Isis Pharmaceuticals will test its experimental antisense drug in 24 children with spinal muscular atrophy at five U.S. centers

posted on January 2, 2012 - 6:00am
A 24-person, phase 1 trial to test the safety and tolerability of the experimental drug ISIS-SMNRx in children with spinal muscular atrophy (SMA) is now open at Columbia University Medical Center in New York, with additional sites expected to open in Boston, Philadelphia, Dallas and Salt Lake City.

A psychologist who ran MDA parent support groups offers guidance on ways to handle misbehavior

posted on October 1, 2011 - 8:30am
QUEST Vol. 18, No. 4
The most important element of disciplining a child is to have your anger under control when doing the disciplining. When your anger is under control, you earn respect from your child, the discipline will be effective, and you are modeling how children can handle their own anger in a healthy manner. Your anger is under control when:
posted on November 1, 2005 - 1:16pm
QUEST Vol. 12, No. 6
"What do you want for Christmas, Ms. Wrigglesworth?” This is a very popular question with third-graders. It’s a good question, one that has an infinite number of answers. A lot of people have asked me this before: my students, my mom, even Santa himself when I sat on his lap every year at the mall. I remember being in elementary school and faced with the task of writing a letter to Santa that had...
posted on March 1, 2005 - 11:42am
"Don’t worry, Chris. Someday you’ll meet someone who’ll look past the wheelchair and see the real you." These words of consolation were uttered by one of my best friends, in the middle of a sleepless night during my sophomore year in college, in the wake of my being turned down for a date by the current "girl of my dreams." These words were ones of kindness, of compassion, of encouragement,...

Skills for school and play

posted on November 1, 1999 - 5:00pm
ln vol. 6, no. 5, we described occupational therapy for adults ("Skills for the Job of Living"). This story looks at OT for children, whose "jobs" are different and whose developing brains need special attention. I think we were in a big denial," says Faith Varcadipane of Satellite Beach, Fla., when she talks about the first year of her son's life.