Centers for Disease Control and Prevention

An online survey aims to reduce the time it takes parents to get an accurate diagnosis for their children.

posted on January 21, 2010 - 2:57pm
There’s often quite a gap between the time when parents first have worries about their infant or child and when they finally learn the child has a neuromuscular disease. The National Task Force for the Early Identification of Childhood Neuromuscular Disorders is conducting a survey to learn more about parents' first concerns about their children and how they described those concerns to their...
posted on December 31, 2009 - 1:20am
QUEST Vol. 17, No. 1
A comprehensive set of clinical care recommendations for the diagnosis and management of Duchenne muscular dystrophy (DMD) is now available to medical professionals and families. The guidelines pull together recommendations previously released by other groups, such as the American Academy of Neurology, and clarify some areas in which consensus has been lacking.