A physician with mitochondrial myopathy describes undergoing and taking care of her tracheostomy
I am writing this article about getting a tracheostomy for others with muscular dystrophies. Many patients are reluctant to have the procedure done because they fear they will lose the ability to talk or to swallow. Neither is true. And, the new trach tubes make it possible to easily take care of a tracheostomy and the tubes.
In people with muscle diseases, testing for sleep-breathing problems is tricky, but worth it
Do you suffer from sleep disturbances — snoring, choking or gasping, or restless tossing and turning?
Do you wake up in a sweat in the middle of the night, or arise in the morning feeling fatigued, or with headaches, sore throat or dry mouth?
Do you experience memory and concentration problems, or find you’re excessively sleepy during the day, falling asleep when you normally shouldn’t, such as...
When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support.
But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.”
When a person’s overall quality of life is no longer acceptable, that’s...
People of every ability can practice yoga for fun and fitness
Kathy Senecal helps Keith Mullinar, who has inclusion-body myositis, do the pawanmuktasana pose, or seated side stretch.
Options offered for respiratory care
This is the first of a two-part series on respiratory care, which concludes with "A Breath of Fresh Air."