'Best practices' for treating various neuromuscular diseases are described in this third and final report on MDA's 2012 Clinical Conference

posted on April 19, 2012 - 6:00am
Several experts presented their views of "best practices" for care of people with neuromuscular disorders at MDA's 2012 Clinical Conference, held in Las Vegas March 4-7. Many questions remain about optimal care in these disorders, but it's clear that attention to heart and respiratory function are of paramount importance. This article looks at:

A physician with mitochondrial myopathy describes undergoing and taking care of her tracheostomy

posted on March 31, 2011 - 10:23am
QUEST Vol. 18, No. 2
I am writing this article about getting a tracheostomy for others with muscular dystrophies. Many patients are reluctant to have the procedure done because they fear they will lose the ability to talk or to swallow. Neither is true. And, the new trach tubes make it possible to easily take care of a tracheostomy and the tubes.

In people with muscle diseases, testing for sleep-breathing problems is tricky, but worth it

posted on March 1, 2008 - 3:29pm
QUEST Vol. 15, No. 2
Do you suffer from sleep disturbances — snoring, choking or gasping, or restless tossing and turning? Do you wake up in a sweat in the middle of the night, or arise in the morning feeling fatigued, or with headaches, sore throat or dry mouth? Do you experience memory and concentration problems, or find you’re excessively sleepy during the day, falling asleep when you normally shouldn’t, such as...
posted on July 1, 2007 - 10:11am
QUEST Vol. 14, No. 4
When neuromuscular disease weakens the muscles used for breathing, many people benefit greatly from noninvasive ventilation (NIV), which can add years of breathing support. But when a tracheostomy and ventilator are suggested for better breathing, some people see NIV as “enough” and a trach and vent as somehow “too much.” When a person’s overall quality of life is no longer acceptable, that’s...

People of every ability can practice yoga for fun and fitness

posted on May 1, 2007 - 2:36pm
QUEST Vol. 14, No. 3
Kathy Senecal helps Keith Mullinar, who has inclusion-body myositis, do the pawanmuktasana pose, or seated side stretch.

Options offered for respiratory care

posted on October 1, 1998 - 3:37pm
This is the first of a two-part series on respiratory care, which concludes with "A Breath of Fresh Air."