I’m 44 years old, and was officially diagnosed with Friedreich’s ataxia (FA) at age 19, so you might say this article is 25 years in the making! I can tell you with absolute certainty that over these 25 years I’ve learned that “we’re all in this together.”
After Hurricane Katrina sent two pine trees crashing through our home, friends said, “It could have been worse.”
And they were right.
We could have lost our entire home. Jim, my husband, could have been unemployed. Weston, my son, could have spent his entire freshman year attending high school in Texas.
Youngsters with neuromuscular diseases count the days until 'the best week of the year'
More Than a Mom: Living a Full and Balanced Life When Your Child Has Special Needs, by Amy Baskin and Heather Fawcett, 487 pages, 2006, $18.95. Woodbine House, (800) 843-7323, www.woodbinehouse.com.
Who: Chantal Cermak, 40 Where: Bemidji, Minn. DX: Metabolic myopathy, diagnosed at age 39
Let’s be honest: There aren’t many positive aspects to living with a disability. I trip. I fall. Reality sucks. Life’s miserable. Disability ruined my life and undermined my independence.
These pessimistic thoughts dominated my life for almost 11 years after I received a diagnosis of Friedreich’s ataxia (FA) in 1994. But recently I’ve come to realize that these negative aspects distort the...
Below is a selection of contributions submitted in response to the Quest story, Self-Image and Disability. Each of the opinions expressed below are from people served by MDA.
Be sure to check out the MDA Art Collection for more examples of self-expression by artists with neuromuscular disease.