apathy

Specialists, support groups and stimulant medications help families cope with the unusual cognitive and personality effects of type 1 myotonic dystrophy

posted on September 1, 2008 - 2:27pm
*Many people interviewed for this article asked not to be identified to protect the privacy of affected family members. “Everybody knows the word apathy,” says a California woman whose 25-year-old daughter’s type 1 myotonic dystrophy (MMD1, sometimes called DM1) was diagnosed just a few years ago. “People use the word loosely. I don’t think it does justice to the reality of this disease.”

Sometimes, just to keep moving IS the race

posted on April 1, 2009 - 7:00am
QUEST Vol. 16, No. 2
As a kid, I couldn’t play — much less had any interest in — sports, so I wrongly assumed that exercise just wasn’t necessary. I was a brainiac and a science fiction nerd, so I figured that exercise was just for the jocks, right? The only physical exercise I ever did on a regular basis were what I called Pumps.

Specialists, support groups and stimulant medications help families cope with the unusual cognitive and personality effects of type 1 myotonic dystrophy

posted on September 1, 2008 - 2:27pm
QUEST Vol. 15, No. 5
*Many people interviewed for this article asked not to be identified to protect the privacy of affected family members. “Everybody knows the word apathy,” says a California woman whose 25-year-old daughter’s type 1 myotonic dystrophy (MMD1, sometimes called DM1) was diagnosed just a few years ago. “People use the word loosely. I don’t think it does justice to the reality of this disease.”