Houston conference planned for families affected by centronuclear myopathies; includes live Webcast
Families affected by muscle diseases known as centronuclear myopathies, including myotubular myopathy, may be interested in attending a conference in Houston July 24-26, either in person or online.
When Patrick and Sarah Foye of Pine Brook, N.J., had their baby boy, Adam, in 2001, there was little reason to believe at first that anything was wrong. "Adam had a normal birth," Sarah says, but things didn't go as well as expected in the months that followed.
Patrick is a physician specializing in rehabilitation, and Sarah is an occupational therapist, so they were quick to note that something...