A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams

posted on January 9, 2014 - 9:31am
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19. 

Advocacy is needed to pass amendments to this landmark bill that will expand muscular dystrophy research and health care efforts

posted on October 3, 2013 - 9:12am
Quest Vol. 20, No. 4
Times have changed dramatically since 2001, thanks to the passage that year of the Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Act — a bill designed to advance research and health care for all forms of muscular dystrophy. Among the changes:

The Ms. Wheelchair America program gives women with disabilities a platform for breaking down barriers and promoting important change

posted on July 1, 2013 - 9:07am
Quest Vol. 20, No. 3
Wanted: Articulate, dynamic, driven women with a strong vision for change in the world. Must be willing to break down barriers and connect with people of all backgrounds. Public speaking and statewide travel required. Candidates will be provided with expert training in handling media inquiries, optimizing social media networking, public speaking, current legislative and public policy trends, self...

This international event seeks to foster cooperation and encourage research on behalf of people with rare diseases — and here's one way you can do just that

posted on February 26, 2013 - 5:00am
In the United States, a disease or disorder is defined as “rare” when it affects fewer than 200,000 Americans at any given time; in Europe, when it affects less than one in 2,000 people. Clearly, we’re talking about very small numbers of people. But put them all together, and the numbers tell a different story. More than 6,000 rare diseases affect more than 60 million people in Europe and the U.S...