Balancing parenthood and neuromuscular disease is not just possible — many dedicated moms and dads who live that reality every day say having kids is the best decision they've ever made
posted on July 7, 2014 - 9:23am
Matthew Martin and Amanda Hall have more than a few things in common. They’re roughly the same age — Martin is 28; Hall is 30. They both call the state of Texas home — Martin in Rowlett; Hall in Glenrose. Then there’s the fact that each lives with a neuromuscular disease — Martin was diagnosed with Duchenne muscular dystrophy (DMD) at the age of 8; Hall with...
Beth and Dan Gore have a most extraordinary family. Over the past dozen years, the Brandon, Fla., couple has adopted six children with disabilities, the youngest being Manny, a 3-year-old with congenital muscular dystrophy.
Meet Manny. He's one of six children with disabilities adopted by Beth and Dan Gore of Brandon, Fla. Three-year-old Manny — who has merosin-deficient congenital muscular dystrophy and has been in and out of the hospital due to gastrointestinal, respiratory and cardiac issues — is the subject of Beth’s fifth published children’s book, Mighty Manny.
I believe in miracles. I look at her face every day. Her name is Grace...and she is our miracle.
Living life from a wheelchair, and knowing each day the physical limitations I have, it was no surprise when doctors confirmed that for me to go through pregnancy and a natural childbirth would be dangerous. It was no surprise, but it was devastating to face the reality that I’d never experience this...
A tireless volunteer and advocate, Tennessee's Jan Blaustone wins MDA National Personal Achievement Award
posted on October 1, 2000 - 4:44pm
To Jan Blaustone, leadership means setting a positive example.
Blaustone, 45, strives to be a model for others, whether she's writing, speaking, teaching, creating artwork or making a difference in her community.