adjusting

Parents often struggle to find the right way to help their shy child with a neuromuscular disease

posted on August 1, 2002 - 4:59pm
James — a hypothetical boy — is 14 and has Duchenne muscular dystrophy (DMD). James has always been a little reserved around strangers, but over the past several years — especially since he lost the ability to feed himself — he has become increasingly resistant about going out in public, to the point that his mother practically has to beg him to go to a movie. He refuses to attend MDA summer camp...

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