News and updates from the MDA community

posted on April 21, 2015 - 9:05am
A True Advocate: Kristin Stephenson, MDA’s new vice president of Policy and Advocacy, discusses her new role and her personal connection to MDA

MDA advocacy efforts are focused on accelerating research advances and treatment discovery while expanding the resources available to those affected with the disease

posted on August 29, 2013 - 10:37am
Today, research discoveries are bringing us closer than ever to effective therapies for spinal muscular atrophy (SMA) and other neuromuscular diseases. Medical knowledge of neuromuscular disease is broadening, and children and adults with these diseases are living longer, fuller lives. But significant challenges remain.

MDA advocacy in Washington

posted on April 1, 2013 - 9:23am
Quest Vol. 20, No. 2
I have had the great privilege of witnessing some of the most transformative legislative moments in our MDA community’s history. While we have many heroes and legends among us, there are also many heroes whose names most will never know — people who, through their outreach to their elected officials, brought great champions to the cause of neuromuscular disease research and services.

If passed into law, the ABLE Act would create special savings accounts to be used for disability-related expenses without threatening other government benefits

posted on January 17, 2012 - 2:42pm