Volunteering

posted on April 1, 2013 - 9:07am
Camp's a-coming! Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports...

A woman with mitochondrial myopathy mounted a successful Facebook effort to assist a vent-dependent friend stranded with no power after Hurricane Sandy

posted on November 21, 2012 - 5:00am
“As you all know, being the creative type that I am, I love do-it-yourself projects … However, I found myself in the middle of a rather unusual project, which involved a lot of creative ‘thinking outside of the box,’ and it was more than just a do-it-yourself. It was more of a ‘do it ourselves’ project. And we did it. Successfully. Here’s the story of how we helped Nick Dupree.”

'Shambassadors' inspire Shamrock programs to be the best they can be

posted on January 1, 2012 - 2:45pm
QUEST Vol. 19, No. 1
In the weeks surrounding St. Patrick’s Day, all across the country, participating retailers sell green and gold clover-shaped MDA Shamrocks mobiles for $1 and $5. The immensely popular Shamrocks fundraising program — which celebrates its 30th anniversary this year — has grown in income every single year, even during economic downturns, says Brian Hunter, MDA vice president of business development...

MDA’s 2011 Personal Achievement Award recipient for Montana has Dejerine-Sottas disease, helps others with disabilities

posted on October 3, 2011 - 3:53pm
When talking with Leanne Beers of Missoula, Mont., you can’t help thinking that this is one upbeat, optimistic woman. “Even though you have muscular dystrophy, or any limitation for that matter,” she says, “it doesn’t mean you can’t accomplish the goals you want. You just may have to go about it differently. There’s no reason you can’t be happy and thrive on life.”

Canines that don't make the cut at other service-animal training programs are welcome at Phoenix Assistance Dogs

posted on August 26, 2011 - 2:15pm
From the moment Linzey Zoccola received her first service dog at age 16, she knew what she wanted to do with her life. Zoccola has type 2 spinal muscular atrophy and has used a power chair since the age of 4. She has always been strongly independent, but having a service dog was a revelation. Here was a creature that not only brought her joy and companionship, but also helped her perform tasks at...

Deadline is Aug. 31, 2011, to nominate 'Community Champions' who have been MDA volunteers or have supported someone with a muscle disease

posted on June 29, 2011 - 4:25pm
Do you know an exceptional kid between the age of 6 and 17 who has volunteered for MDA or supported someone with a neuromuscular disease? Here’s your chance to nominate him or her for some well-deserved recognition. WWE (World Wrestling Entertainment) and MDA are looking for two Community Champions this summer: young people who have demonstrated “exceptional commitment” to supporting MDA or who...

Life is hard but full of love at this small center run by the families of Nepalese boys with Duchenne muscular dystrophy

posted on June 23, 2011 - 3:29pm
QUEST Vol. 18, No. 3
“I have a degree in biochemistry, and no experience in physiotherapy.” I kept reminding myself of this fact as Suse, a volunteer from Germany, and I first walked into the Duchenne Muscular Dystrophy (DMD) Centre for Boys in Bhaktapur, Nepal.
posted on January 1, 2011 - 3:43pm
QUEST Vol. 18, No. 1
I always knew I was different. I couldn’t do what the other kids could do even though I was an active, outdoors kind of boy. I was always slower running the bases at sandlot baseball and slower on my bicycle than the other kids in the neighborhood. I tried hard, but I just couldn’t keep up. The doctor told my parents that there was nothing to worry about. All I had was flat feet.