Funding

A trial of an experimental compound to counteract muscle inflammation and scarring in Duchenne MD resumes, after an interruption to complete a dog safety study

posted on June 17, 2014 - 12:38pm
Update (July 3, 2014): Akashi says the HT-100 main trial is now closed; the extension study is open to those who have already participated in the main trial.

Ramps are expensive but worth it for the independence and safety they provide, says a man who details his experiences with having a ramp built for his wife

posted on July 1, 2013 - 9:11am
Quest Vol. 20, No. 3
When my wife got her TiLite manual wheelchair, it opened up a world of freedom for her. Her back pain was gone, along with her risk of falling, and she could move longer distances. Suddenly, she could again move across the shopping mall, maneuver around the house and perform at her job. While the wheelchair gave her more freedom inside and outside the house, it introduced a new challenge: getting...

CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012

posted on October 5, 2012 - 4:55pm
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.

Funds from the Affordable Care Act are now available in most states to help people move out of, or avoid, institutional care

posted on May 6, 2011 - 3:38pm
The federal government is moving ahead with plans to expand access to home and community based services for individuals who receive Medicare and Medicaid benefits. HHS Secretary Kathleen Sebelius announced in April that $3.7 billion in federal funds will be made available to implement the Community First Choice Option, a provision of the new health care law (the Affordable Care Act) which...

A nonprofit led by a teacher and minister with limb-girdle MD again is offering postgraduate scholarships and small quality-of-life grants

posted on April 8, 2011 - 4:57pm
(Update 9/14/11: The 2011 scholarship winners have been selected. To view a list of winners visit www.deshae.org/cmms/awards/2011/scholars.pdf. Applications for quality of life grants continue to be accepted and are awarded on an ongoing basis.)

A state rehabilitation program remodeled my bathroom — and my life

posted on March 31, 2011 - 11:44am
QUEST Vol. 18, No. 2
I never thought I would be so excited about getting a new toilet, sink and shower. But my new fully wheelchair-accessible bathroom has made such a difference in my life, my attitude and my outlook that I can truly say this makeover has been a life-changing event. More than 10 years ago, I received a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Over the years, I’ve...