Resources

A phase 1b trial of a drug designed to increase utrophin protein levels in Duchenne MD-affected muscles, appears safe and may have muscle-protective effects

posted on May 27, 2014 - 9:50am
 

CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012

posted on October 5, 2012 - 4:55pm
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.
posted on April 9, 2012 - 12:00pm
QUEST Vol. 19, No. 2
Spring is in the air, and you know what that means — it’s time to prepare for your child’s IEP or 504 plan meeting. Whether you’re just getting started or you’re an old pro, it’s always a good idea to get your game plan ready ahead of time. To help alleviate the stress that can go along with IEP meetings, here’s a roundup of some useful resources that can strengthen your IEP/504 plan toolkit and...

Also included, a section on income tax deductions

posted on January 1, 2012 - 12:22pm
QUEST Vol. 19, No. 1
Check out The EZ-Use Kitchen for information about these products. Appliances Drawer dishwashersFisher & Paykel Appliances(888) 936-7872

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.

A nonprofit led by a teacher and minister with limb-girdle MD again is offering postgraduate scholarships and small quality-of-life grants

posted on April 8, 2011 - 4:57pm
(Update 9/14/11: The 2011 scholarship winners have been selected. To view a list of winners visit www.deshae.org/cmms/awards/2011/scholars.pdf. Applications for quality of life grants continue to be accepted and are awarded on an ongoing basis.)

A state rehabilitation program remodeled my bathroom — and my life

posted on March 31, 2011 - 11:44am
QUEST Vol. 18, No. 2
I never thought I would be so excited about getting a new toilet, sink and shower. But my new fully wheelchair-accessible bathroom has made such a difference in my life, my attitude and my outlook that I can truly say this makeover has been a life-changing event. More than 10 years ago, I received a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Over the years, I’ve...