Clinical Trials and Studies

How identifying the body's key signs and measurements spurs lifesaving progress in research, clinical trials and therapy development

posted on October 8, 2015 - 9:41am
Imagine being in a strange city. You’re driving to the airport to catch a flight. Now suppose every street sign and traffic light you see is covered in paint. Which way do you turn? You look at your dashboard. All the indicators are covered in paint, too. Is the tank full or empty? Is the engine hot? Should you go faster? Slower? Or stop altogether? The truth is you simply don’t have...

Research and clinical trial updates

posted on October 8, 2015 - 9:23am
Quest Fall 2015
Towards Treatments and Cures New grants pave the way to progress

MDA families eager for research breakthroughs take active roles to accelerate therapy development and spread awareness of MDA's mission

posted on July 14, 2015 - 3:19pm
Quest Summer 2015
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.

How unique advances are helping popularize the trend of accessible video gaming

posted on July 14, 2015 - 3:09pm
Quest Summer 2015
The World Health Organization estimates that at least 10 percent (roughly 700 million) of the world’s population is affected by a disability, while the Entertainment Software Association reports 500 million people play video games for at least an hour a day. The extent to which these two groups overlap on a global scale is unknown — but it’s likely more than you think.

Research and clinical trial updates

posted on July 14, 2015 - 3:03pm
Quest Summer 2015
Powerful Research MDA welcomes a neurological disease expert to the family

A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

posted on June 15, 2015 - 1:01pm
In recognition of June being National Myasthenia Gravis Awareness Month, MDA is examining the disease from several perspectives. This article offers an overview of signs, symptoms, diagnosis and treatments for myasthenia gravis (MG), as well as information on drugs that people with MG should avoid.

Progress in ALS research requires a free flow of information between MDA-supported laboratory investigators and leaders in the drug-development industry

posted on April 21, 2015 - 9:17am
Quest Spring 2015
ALS, also known as amyotrophic lateral sclerosis and Lou Gehrig’s disease, is among the most feared diseases facing people in the U.S. and worldwide. In ALS, the motor neurons — the nerve cells of the brain and spinal cord that control muscle action — mysteriously deteriorate, often within just a few years, leaving behind orphaned muscle fibers. Without signals from motor neurons, voluntary...

MDA's 2015 Scientific Conference points the way toward tomorrow's therapies

posted on April 21, 2015 - 9:07am
Quest Spring 2015
Last month, MDA brought together more than 400 of the nation’s leading scientists, researchers and professionals specializing in neuromuscular disease research and care at its 2015 Scientific Conference in Washington, D.C., March 11–14. This pre-eminent gathering, hosted every other year, was designed to accelerate discoveries and drug development for families fighting neuromuscular diseases.