Research

posted on October 30, 2014 - 9:19am
“If I was down, who was going to take care of him?” 
posted on October 30, 2014 - 9:17am
Katrina Gossett knows the importance of gynecologic (pelvic) exams, but she is not eager to repeat her last exam experience. Katrina Gossett, 29, has only had one gynecologic (pelvic) exam in her life, and it’s not an experience she’s eager to repeat.
posted on October 30, 2014 - 9:15am
For people fighting neuromuscular disease,“progress” is a word that describes encouraging advances in the search for treatments and cures. But it’s also a word that evokes the forward-looking perspectives and remarkable life journeys of those living with these diseases who meet extraordinary challenges.  
posted on October 30, 2014 - 9:12am
Upon hearing my diagnosis — type 1 myotonic muscular dystrophy (MMD, or DM) — at the age of 20, I must admit, my world crumbled for a moment. I’ll never forget how the room seemed to shrink and spin, how the doctor’s voice morphed into white noise, and how visions of immobility caught my breath. 
posted on October 30, 2014 - 9:11am
“Samantha” is a typical 30-something single female who has a successful, fulfilling career in investment banking. Samantha also enjoys an active social life, but when she looks around her and sees friends and peers in romantic relationships, she can’t help but desire the same for herself.
posted on October 30, 2014 - 9:09am
Earlier this year, Bonnie and Ethan Marquez and their sons, Peyton, 8, and Logan, 11, were on vacation in Yosemite National Park when Peyton, who has Duchenne muscular dystrophy (DMD), became intrigued by the park’s famous Half Dome — a 4,700-foot-high granite rock formation in the shape of, you guess it, a dome sliced in half.
posted on October 30, 2014 - 9:07am
Note: The products mentioned in this article are not endorsed by MDA. When choosing any assistive technology equipment, be sure to do your research and consult with your MDA clinic team, as well as with an assistive technology professional (ATP). Between fall road trips and upcoming holiday travel, wouldn’t it be great to know the accessibility features of every place you might go before...
posted on October 30, 2014 - 9:05am
Hustle for Muscle: A family affected by MD forms endurance running team to raise money for MDA