Research

posted on April 21, 2015 - 9:23am
Ben Schussler loves to fish. So when he’s at MDA summer camp, he heads for the dock and casts his line as often as possible. “I catch two or three fish a day,” 8-year-old Ben boasts with glee in his little voice. Fishing is not a particularly unusual passion for a boy his age, although in Ben’s case, it isn’t something he thought he would — or could — ever enjoy.
posted on April 21, 2015 - 9:21am
Like all people living with amyotrophic lateral sclerosis (ALS), Joan Sucher, 65, a mother of three adult children in Ballwin, Mo., was devastated when she received her diagnosis. “My life collapsed,” Sucher shares in an email interview with Quest. “We were inconsolable. I had been healthy and active all my life. I ran regularly and finished nine half marathons after age 48. And I had no family...
posted on April 21, 2015 - 9:19am
When I was 2, I was diagnosed with central core disease (a disease that causes problems with the tone and contraction of skeletal muscles). Doctors told my parents, who were trying to wade through the unknown waters of this thing called “neuromuscular disease,” that I would never be able to walk on my own without a walker or crutches. But years of physical therapy, leg braces, a walker and a pair...
posted on April 21, 2015 - 9:17am
ALS, also known as amyotrophic lateral sclerosis and Lou Gehrig’s disease, is among the most feared diseases facing people in the U.S. and worldwide. In ALS, the motor neurons — the nerve cells of the brain and spinal cord that control muscle action — mysteriously deteriorate, often within just a few years, leaving behind orphaned muscle fibers. Without signals from motor neurons, voluntary...
posted on April 21, 2015 - 9:15am
When your mother told you to “stop and smell the roses,” it may have been more than sweet advice. According to the American Horticulture Therapy Association, a professional organization that provides certification for horticulture therapists, there is a growing awareness of the benefits humans enjoy when exposed to plants and gardens.
posted on April 21, 2015 - 9:12am
There sure is a lot of happiness going around — videos going viral with giggling babies, happy dogs and even happy elephants. For the past year we've watched montages of people joyfully taking to the streets dancing to the infamous Pharrell Williams’ hit song, “Happy.”
posted on April 21, 2015 - 9:11am
When he was 17 years old, Zach Smith, who received a diagnosis of Duchenne muscular dystrophy (DMD) at age 6, began researching technologies that could help him use his arms to do things he had trouble with, such as eating or playing Ping-Pong.
posted on April 21, 2015 - 9:09am
For many MDA families living with neuromuscular disease, there are few challenges more persistent and more taxing on a daily basis than those related to basic mobility. While each person’s level of physical activity is relative to his or her specific diagnosis — as well as the corresponding exercise parameters established ahead of time by his or her care team — mobility issues affect the entire...