Actor Max Adler is 'making a muscle for MDA' in honor of his late mother and grandmother with FSHD
posted on July 1, 2011 - 4:20pm
The hit TV show “Glee” launched actor Max Adler into the national spotlight as football player and bully Dave Karofsky. But it’s his late mother’s fight with facioscapulohumeral muscular dystrophy that launched him toward MDA’s Muscle Team.
Can love, courage and modern medical technology prevent muscular dystrophy from being passed on to the next generation?
posted on March 31, 2011 - 12:01pm
It was the worst Monday morning of our lives — and Mondays are universally bad.
My wife, Monique, and I woke up to a snow lockdown in London. The snow had started gently enough in the evening, but now on this January morning it was a white strait jacket. We could hardly move, but we desperately needed to get to Nottingham at all costs. Our potential future children — two fertilized and rapidly...
posted on July 1, 2010 - 5:35pm
Having a baby can be the most thrilling and rewarding experience of a woman’s life, yet it also can be fraught with fear and uncertainty. This is especially true for women with neuromuscular disease. This special report takes a look at the issues that arise for expectant mothers with muscle disease and finds that, with proper care and planning, these women are usually — although not always...
posted on June 30, 2010 - 5:36pm
Erin Brady Worsham, 51Nashville, Tenn.amyotrophic lateral sclerosis (ALS)
Erin Brady Worsham tried to get pregnant for six years, with no luck. She had accepted that she was never going to be a mother. Then, in a turn of fate worthy of a novel, she got pregnant the day after she received a diagnosis of amyotrophic lateral sclerosis (ALS).
posted on June 30, 2010 - 5:34pm
Aimee Chamernik, 40Grayslake, Ill.amyotrophic lateral sclerosis (ALS)
Aimee Chamernik was 33 and just beginning her third pregnancy when she noticed she was having difficulty enunciating as she read to her son at bedtime. “I thought it was odd, but I chalked it up to being tired after caring for two small children all day with a third on the way,” Chamernik says.
posted on June 30, 2010 - 5:26pm
Kathy Rivera, 58Tucson, Ariz.type 2 Charcot-Marie-Tooth disease
Like many people with Charcot-Marie-Tooth (CMT), Kathy Rivera didn’t realize she had a neuromuscular disease until relatively late in life. Called “clumsy” as a child, she wore special shoes to keep her feet facing forward, but didn’t receive an official diagnosis of CMT until age 36.
posted on June 30, 2010 - 5:24pm
Liz Trumpy, 39Levittown, N.Y.type 1 myotonic dystrophy
Liz Trumpy was an active, apparently healthy New York City police captain who worked out with weights, ran a marathon and participated in mini-triathlons. Married to another police officer, she went to the gym regularly throughout her pregnancy, even on the day before she gave birth.
“If Kelly had been born without health problems, I...
