Children with an MD

Dedicated MDA family caregivers share best practices for supporting loved ones and themselves

posted on October 30, 2014 - 9:19am
“If I was down, who was going to take care of him?” 
posted on April 1, 2009 - 3:27pm
QUEST Vol. 16, No. 2
Annie Kennedy Meet my friend, Vance. Vance is a 30-something man, a “people person,” husband, father, homeowner, accomplished professional with multiple degrees from prestigious universities, and valued community member, friend and employee.
posted on April 1, 2009 - 2:00pm
QUEST Vol. 16, No. 2
Q: What is exercise? Why do it?

Simple ways to resist injury

posted on April 1, 2009 - 9:19am
QUEST Vol. 16, No. 2
It just takes one little wrong move, like leaning over to tie a loved one’s shoelace, for something to pop in the lower back and put you out of commission. For a caregiver, this kind of injury can be disastrous.

Nintendo Wii provides a virtual workout

posted on April 1, 2009 - 7:08am
QUEST Vol. 16, No. 2
Jacob Engers, a ninth-grader from Baltimore, switched from a 504 plan to an IEP once he qualified to receive adapted physical education (P.E.) services. In most areas, schools require all students to complete a P.E. requirement. For this reason, adapted P.E., which can be provided by a physical education teacher or special education teacher, isn’t considered a “related service,” and occupational...
posted on April 1, 2009 - 7:08am
QUEST Vol. 16, No. 2
The Patient Advisory Group of the International Coordinating Committee for SMA Clinical Trials (which includes MDA, Families of SMA, Fight SMA and the SMA Foundation) has published a family-friendly version of a consensus statement on care of patients with SMA designed for physicians. The family guide for SMA provides recommendations for diagnosis, monitoring and treatment of the disease. This is...
posted on January 1, 2009 - 3:07pm
QUEST Vol. 16, No. 1
Featured in this article: Brothers attend governor's proclamation signing ** Recognition for MDA Task Force member ** Olympic Gold Medalist drops in for dinner ** MDA and Walgreens team up to provide flu shots ** MDA wins awards for excellence in design ** Double milestone for MDA Art Collection.

The benefits of standers for children are clear

posted on January 1, 2009 - 2:31pm
QUEST Vol. 16, No. 1
Ten-year-old Morgan Fritz of St. Peters, Mo., received a spinal muscular atrophy (SMA) diagnosis when she was 15 months old. Three months later, she began a standing program, and she’s kept at it ever since.