Deciding to experience an abundant life allows for the fewest regrets in the end
posted on October 1, 2011 - 12:33pm
Many years ago, when the physician said that my son Joe, who had type 1 spinal muscular atrophy, perhaps would live until 2 years old, I went into “Rambo mode,” ready to attack anything that got close enough to harm him.
But as the years went by and Joe’s health held stable, I silently vowed I would do my best to allow him to live outside the sterile little bubble I had created around him.
A psychologist who ran MDA parent support groups offers guidance on ways to handle misbehavior
posted on October 1, 2011 - 8:30am
The most important element of disciplining a child is to have your anger under control when doing the disciplining. When your anger is under control, you earn respect from your child, the discipline will be effective, and you are modeling how children can handle their own anger in a healthy manner.
Your anger is under control when:
Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers
posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA.
MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...
posted on July 1, 2011 - 1:57pm
Thanks to improvements in diagnostic and clinical care, there’s a new population of people in the world: adults with “pediatric” muscle diseases.
MDA is committed to ensuring bright futures for all our children with neuromuscular diseases who will someday “transition” into adults with a different set of needs than they had as children.
Life is hard but full of love at this small center run by the families of Nepalese boys with Duchenne muscular dystrophy
posted on June 23, 2011 - 3:29pm
“I have a degree in biochemistry, and no experience in physiotherapy.” I kept reminding myself of this fact as Suse, a volunteer from Germany, and I first walked into the Duchenne Muscular Dystrophy (DMD) Centre for Boys in Bhaktapur, Nepal.
Tech-savvy Girl Scouts designed and built an award-winning wheelchair backup camera for friends with SMA
posted on May 25, 2011 - 12:18pm
Ten-year-old Quinn Schnitzlein has been using a power chair since he was 3, so he’s a pretty good driver. But the boy from Marietta, Ga., who has spinal muscular atrophy (SMA), often bumped into things when he backed up.
One day last year, Quinn and some friends were at a fast-food restaurant. “We were at different tables,” Quinn says, “and when I’d try to turn around to talk to them, I kept...
Logan Mitzel, who has Duchenne muscular dystrophy, recently lived his dream of swimming with the 14-time Olympic gold medal champion
posted on March 8, 2011 - 1:06pm
Logan Mitzel has one word for his swim with Olympic champion Michael Phelps: “awesome.”
The 11-year-old from Aurora, Ill., who has Duchenne muscular dystrophy (DMD) and relies on a manual wheelchair for mobility, loves to swim so much that in 2010 he completed a streak of swimming every day for 77 consecutive days.
