Deciding to experience an abundant life allows for the fewest regrets in the end
posted on October 1, 2011 - 12:33pm
Many years ago, when the physician said that my son Joe, who had type 1 spinal muscular atrophy, perhaps would live until 2 years old, I went into “Rambo mode,” ready to attack anything that got close enough to harm him.
But as the years went by and Joe’s health held stable, I silently vowed I would do my best to allow him to live outside the sterile little bubble I had created around him.
A psychologist who ran MDA parent support groups offers guidance on ways to handle misbehavior
posted on October 1, 2011 - 8:30am
The most important element of disciplining a child is to have your anger under control when doing the disciplining. When your anger is under control, you earn respect from your child, the discipline will be effective, and you are modeling how children can handle their own anger in a healthy manner.
Your anger is under control when:
Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers
posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA.
MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...
Actor Max Adler is 'making a muscle for MDA' in honor of his late mother and grandmother with FSHD
posted on July 1, 2011 - 4:20pm
The hit TV show “Glee” launched actor Max Adler into the national spotlight as football player and bully Dave Karofsky. But it’s his late mother’s fight with facioscapulohumeral muscular dystrophy that launched him toward MDA’s Muscle Team.
posted on July 1, 2011 - 1:57pm
Thanks to improvements in diagnostic and clinical care, there’s a new population of people in the world: adults with “pediatric” muscle diseases.
MDA is committed to ensuring bright futures for all our children with neuromuscular diseases who will someday “transition” into adults with a different set of needs than they had as children.
posted on July 1, 2011 - 10:57am
Letters to Quest: Choosing to have a child * Diagnosis explains past symptoms * CMT exercise warm-up tip * Mike Murphy articles inspire
Study finds that children and adults with SMA who can't walk but otherwise have good motor function are at risk for becoming overweight
posted on July 22, 2010 - 10:20am
Children and adults with types 2 and 3 spinal muscular atrophy (SMA) who are no longer walking have an increased risk of being overnourished and overweight if they otherwise have relatively good motor function, a multicenter study shows.
The results emphasize the importance of a "dedicated and experienced nutritionist" in SMA medical management, the researchers say.
About the study
