In my first six months in my new role, I’ve traveled the country meeting with MDA families, supporters, researchers, staff and others who care passionately about our mission. As a result, I’ve come to view the word HOPE in a new way. HOPE is not only the powerful intention to discover lifesaving treatments and cures. HOPE is a commodity that can be measured — in progress.
Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports...
Spring is a time of change and new growth, and MDA is experiencing a lot of both these days. No matter where you look, we’re innovating, extending our reach, leveraging our resources, supporting new initiatives and building partnerships.
R. Rodney Howell has received a March of Dimes award for helping ‘give every baby a chance at a healthy start in life’
R. Rodney Howell — respected geneticist, pediatrician and chairman of the MDA Board of Directors — has been honored by the March of Dimes for playing a key role in developing the uniform panel of serious disorders for which nearly every baby in the United States now is tested.
As you read this, I'm just completing my first month as the new President and CEO of the Muscular Dystrophy Association. To borrow a cliché from MDA’s close and dear fire fighter partners, I’ve been “drinking from the fire hose” — in other words, literally inundated with new information.
Whether it’s funding research, or providing services and health care, MDA is keenly focused on improving the lives of those we serve.
That’s why I’m really excited about our latest program: the MDA Neuromuscular Disease Registry. The registry, which will be launched in a number of MDA clinics by the end of this year, is a powerful tool for improving care, and ultimately, length and quality of...