MDA Leaders and Spokespeople

MDA is committed to accelerating progress for its families fighting muscular dystrophy, ALS and related life-threatening diseases

posted on October 8, 2015 - 9:21am
Each day across America, the children and adults we serve and represent demonstrate inspiring can-do spirit and strength, often defying remarkable odds through their actions — from unforgettable events like walking a daughter down the aisle, skydiving or hiking the Grand Canyon, to everyday moments like starting kindergarten, going to college or sharing a laugh with a loved one. 

MDA families eager for research breakthroughs take active roles to accelerate therapy development and spread awareness of MDA's mission

posted on July 14, 2015 - 3:19pm
Quest Summer 2015
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.

MDA families drive progress in the fight against neuromuscular disease

posted on July 14, 2015 - 3:00pm
Quest Summer 2015
Since our last issue, we lost two giants who prominently represented all of us in the MDA family — former National Goodwill Ambassadors Mike Neufeldt and Benjamin Cumbo III. Mike brought an irrepressible sense of joy to everything he did, and Ben demonstrated remarkable grace and unfailing good humor throughout his lifelong battle against muscular dystrophy.

MDA's 2015 Scientific Conference points the way toward tomorrow's therapies

posted on April 21, 2015 - 9:07am
Quest Spring 2015
Last month, MDA brought together more than 400 of the nation’s leading scientists, researchers and professionals specializing in neuromuscular disease research and care at its 2015 Scientific Conference in Washington, D.C., March 11–14. This pre-eminent gathering, hosted every other year, was designed to accelerate discoveries and drug development for families fighting neuromuscular diseases.

News and updates from the MDA community

posted on April 21, 2015 - 9:05am
Quest Spring 2015
A True Advocate: Kristin Stephenson, MDA’s new vice president of Policy and Advocacy, discusses her new role and her personal connection to MDA

Celebrating scientific advancement, MDA summer camp and more

posted on April 21, 2015 - 9:00am
Quest Spring 2015
I am often asked what’s the single most important way we at MDA can best serve our families and best represent our donors. While MDA is delighted to provide an array of services and support, we believe our greatest opportunity for impact is to mobilize aggressively on the front lines in the discovery of treatments and cures. 

News and updates from the MDA community

posted on January 5, 2015 - 9:05am
Quest Winter 2015
Shining STAR: The MD STARnet project expands to learn more about neuromuscular disease

Accelerating progress in 2015 — and beyond

posted on January 5, 2015 - 9:01am
Quest Winter 2015
MDA’s resolve and action steps to accelerate progress on behalf of our families fighting muscle disease has never been greater. People fighting these difficult diseases are depending on MDA to fulfill our mission to save and improve their lives.  To most effectively help our families, MDA must be very intentional about building on the scientific and medical progress we have led for the past...