MDA Leaders and Spokespeople

News and updates from the MDA community

posted on January 5, 2015 - 9:05am
Shining STAR: The MD STARnet project expands to learn more about neuromuscular disease

Accelerating progress in 2015 — and beyond

posted on January 5, 2015 - 9:01am
Quest Winter 2015
MDA’s resolve and action steps to accelerate progress on behalf of our families fighting muscle disease has never been greater. People fighting these difficult diseases are depending on MDA to fulfill our mission to save and improve their lives.  To most effectively help our families, MDA must be very intentional about building on the scientific and medical progress we have led for the past...

News, events and updates from the MDA community

posted on October 30, 2014 - 9:05am
Quest Fall 2014
Hustle for Muscle: A family affected by MD forms endurance running team to raise money for MDA

Challenge Accepted: Finding inspiration and hope in the ALS Ice Bucket Challenge

posted on October 30, 2014 - 9:00am
Quest Fall 2014

News and updates from the MDA community

posted on July 7, 2014 - 9:11am
Quest Summer 2014
A Lasting Legacy: A family honors lost loved ones with a planned gift to MDA

From MDA camp to promising drug trials, summer brings reasons to be hopeful

posted on July 7, 2014 - 9:01am
Quest Summer 2014
Can you hear it? It’s the sound of children’s laughter at nearly 80 MDA summer camps across the country. At MDA camp, thousands of kids with muscle disease discover a world where barriers don’t exist, and they meet many other kids sharing the same needs and experiences. It’s a place where kids can just be kids, as they build lifelong friendships and gain increased self-confidence. 

Through their partnership with MDA, our nation’s heroic fire fighters save lives even off the clock

posted on April 1, 2014 - 9:47am
Quest Spring 2014
The year was 1954. Dwight D. Eisenhower called the White House home, a gallon of gas averaged 22 cents, and the TV show “Father Knows Best” kept Americans captivated with Hollywood’s version of the perfect family. But, as explained in a 1954 article published in The Press-Gazette (Hillsboro, Ohio), no one knew best when it came to treating the estimated 200,000 Americans diagnosed with a “strange...

Fighting the good fight: Celebrating IAFF and all who help us battle muscle disease

posted on April 1, 2014 - 9:01am
Quest Spring 2014
As I meet and work with more and more people in the MDA community — families, staff, volunteers, donors and national partners — I’m amazed at the tenacity that drives our lifesaving mission. We are an army mobilized in the fight against muscle disease.