A breathtaking view: Visions for 2014 worthy of the work ahead (CEO update)
As I travel from state to state, city to city, I continue to have the privilege of meeting ordinary people doing extraordinary things. They faithfully pledge their leadership and support to MDA, making it possible for us to fund worldwide research, provide comprehensive health care services and support to MDA families nationwide, and rally communities to fight back against muscle disease.
Geneticist R. Rodney Howell, chairman of MDA's Board of Directors, testified before a U.S. Senate subcommittee Sept. 26 to support continued funding for newborn screening
R. Rodney Howell, a pediatrician and medical geneticist who chairs MDA's Board of Directors, advocated for passage of the Newborn Screening Saves Lives Reauthorization Act of 2013 (S. 1417) before a U.S. Senate subcommittee on Thursday, Sept. 26.
Howell emphasized that
In my first six months in my new role, I’ve traveled the country meeting with MDA families, supporters, researchers, staff and others who care passionately about our mission. As a result, I’ve come to view the word HOPE in a new way. HOPE is not only the powerful intention to discover lifesaving treatments and cures. HOPE is a commodity that can be measured — in progress.
Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports...
Spring is a time of change and new growth, and MDA is experiencing a lot of both these days. No matter where you look, we’re innovating, extending our reach, leveraging our resources, supporting new initiatives and building partnerships.
R. Rodney Howell has received a March of Dimes award for helping ‘give every baby a chance at a healthy start in life’
R. Rodney Howell — respected geneticist, pediatrician and chairman of the MDA Board of Directors — has been honored by the March of Dimes for playing a key role in developing the uniform panel of serious disorders for which nearly every baby in the United States now is tested.
As you read this, I'm just completing my first month as the new President and CEO of the Muscular Dystrophy Association. To borrow a cliché from MDA’s close and dear fire fighter partners, I’ve been “drinking from the fire hose” — in other words, literally inundated with new information.