MDA Leaders and Spokespeople

Through their partnership with MDA, our nation’s heroic fire fighters save lives even off the clock

posted on April 1, 2014 - 9:47am
The year was 1954. Dwight D. Eisenhower called the White House home, a gallon of gas averaged 22 cents, and the TV show “Father Knows Best” kept Americans captivated with Hollywood’s version of the perfect family. But, as explained in a 1954 article published in The Press-Gazette (Hillsboro, Ohio), no one knew best when it came to treating the estimated 200,000 Americans diagnosed with a “strange...

Fighting the good fight: Celebrating IAFF and all who help us battle muscle disease

posted on April 1, 2014 - 9:01am
Quest Spring 2014
As I meet and work with more and more people in the MDA community — families, staff, volunteers, donors and national partners — I’m amazed at the tenacity that drives our lifesaving mission. We are an army mobilized in the fight against muscle disease. 

News and updates from the MDA community

posted on January 9, 2014 - 9:07am
Quest Winter 2014
Featured in this issue: Muscle Walk in full swing across the country; anti-bullying advocate with Friedreich's ataxia publishes new book; MDA Clinical Conference to be held in March; MDA Team Momentum hits the ground running; Shamrocks program raises millions for the cause; MDA Art Collection achieves milestone; accessible playground database now available; Muscular Dystrophy Coordinating...

A breathtaking view: Visions for 2014 worthy of the work ahead (CEO update)

posted on January 9, 2014 - 9:01am
Quest Winter 2014
As I travel from state to state, city to city, I continue to have the privilege of meeting ordinary people doing extraordinary things. They faithfully pledge their leadership and support to MDA, making it possible for us to fund worldwide research, provide comprehensive health care services and support to MDA families nationwide, and rally communities to fight back against muscle disease. 

Geneticist R. Rodney Howell, chairman of MDA's Board of Directors, testified before a U.S. Senate subcommittee Sept. 26 to support continued funding for newborn screening

posted on September 26, 2013 - 11:16am
R. Rodney Howell, a pediatrician and medical geneticist who chairs MDA's Board of Directors, advocated for passage of the Newborn Screening Saves Lives Reauthorization Act of 2013 (S. 1417) before a U.S. Senate subcommittee on Thursday, Sept. 26. Howell emphasized that

An update from MDA's CEO

posted on July 1, 2013 - 9:00am
Quest Vol. 20, No. 3
In my first six months in my new role, I’ve traveled the country meeting with MDA families, supporters, researchers, staff and others who care passionately about our mission. As a result, I’ve come to view the word HOPE in a new way. HOPE is not only the powerful intention to discover lifesaving treatments and cures. HOPE is a commodity that can be measured — in progress.
posted on April 1, 2013 - 9:07am
Quest Vol. 20, No. 2
Camp's a-coming! Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports...
posted on April 1, 2013 - 9:01am
Quest Vol. 20, No. 2
Spring is a time of change and new growth, and MDA is experiencing a lot of both these days. No matter where you look, we’re innovating, extending our reach, leveraging our resources, supporting new initiatives and building partnerships.