MDA Programs

Through their partnership with MDA, our nation’s heroic fire fighters save lives even off the clock

posted on April 1, 2014 - 9:47am
The year was 1954. Dwight D. Eisenhower called the White House home, a gallon of gas averaged 22 cents, and the TV show “Father Knows Best” kept Americans captivated with Hollywood’s version of the perfect family. But, as explained in a 1954 article published in The Press-Gazette (Hillsboro, Ohio), no one knew best when it came to treating the estimated 200,000 Americans diagnosed with a “strange...

MDA’s critical support for people with ALS

posted on April 1, 2014 - 9:31am
Quest Spring 2014
For many, amyotrophic lateral sclerosis is a fast disease. Once diagnosed, the average life expectancy for a person with ALS can be as few as three to five years. When Ben Thomas received his ALS diagnosis at the age of 29 — just three months after the birth of his only daughter, Emmerson — his world was turned upside down. MDA vs. ALS MDA is the world leader in funding ALS research and...

Fighting the good fight: Celebrating IAFF and all who help us battle muscle disease

posted on April 1, 2014 - 9:01am
Quest Spring 2014
As I meet and work with more and more people in the MDA community — families, staff, volunteers, donors and national partners — I’m amazed at the tenacity that drives our lifesaving mission. We are an army mobilized in the fight against muscle disease. 

MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care

posted on March 7, 2014 - 3:01pm
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members nationwide have in providing expert medical care in neuromuscular disease and identifying new...

MDA re-launches its flagship publication, with a fresh look and the same high-quality content for people living with muscle disease

posted on January 9, 2014 - 9:33am
Quest Winter 2014
The Winter 2014 issue of Quest marks a new chapter for MDA’s flagship publication in print. Our goal with this redesign is to provide you, our dedicated readership, with a more contemporary and visually dynamic resource through which to present the research news and broader narratives that matter most to MDA families and supporters and all those affected by neuromuscular disease.

Feedback from Quest readers and the MDA community

posted on January 9, 2014 - 9:09am
Quest Winter 2014
Editor's note: You could be in Quest! We want to hear from you — share your ideas, experiences and comments with other Quest readers. If you have a letter to the editor that you'd like to submit, be sure to send it in now. See below for more details. Also see below for details on updating your Quest subscription. Letters to the Editor:

News and updates from the MDA community

posted on January 9, 2014 - 9:07am
Quest Winter 2014
Featured in this issue: Muscle Walk in full swing across the country; anti-bullying advocate with Friedreich's ataxia publishes new book; MDA Clinical Conference to be held in March; MDA Team Momentum hits the ground running; Shamrocks program raises millions for the cause; MDA Art Collection achieves milestone; accessible playground database now available; Muscular Dystrophy Coordinating...

A breathtaking view: Visions for 2014 worthy of the work ahead (CEO update)

posted on January 9, 2014 - 9:01am
Quest Winter 2014
As I travel from state to state, city to city, I continue to have the privilege of meeting ordinary people doing extraordinary things. They faithfully pledge their leadership and support to MDA, making it possible for us to fund worldwide research, provide comprehensive health care services and support to MDA families nationwide, and rally communities to fight back against muscle disease.