MDA asks Sarepta Therapeutics' CEO Chris Garabedian about next steps for this promising new drug for DMD
MDA is pushing forward on all levels to accelerate the pace at which we’re able to translate scientific discoveries into improved health outcomes for individuals living with muscle disease.
As you read this, I'm just completing my first month as the new President and CEO of the Muscular Dystrophy Association. To borrow a cliché from MDA’s close and dear fire fighter partners, I’ve been “drinking from the fire hose” — in other words, literally inundated with new information.
The SMA Project, a National Institutes of Health program supported by SMA patient advocacy groups, reports on its therapy development strategy in spinal muscular atrophy
A small-molecule drug candidate for spinal muscular atrophy (SMA) and an effective strategy for advancing therapy development are the primary outcomes being reported by the Spinal Muscular Atrophy (SMA) Project, a program established in 2003 by the National Institute of Neurological Disorders and Stroke (NINDS) to accelerate the development of therapeutic candidates for thi
Entertainment, inspiration and information in an exciting new format
Kicked off with the electrifying song “This Is Love” by Grammy-winning artist will.i.am, the all-new MDA SHOW of STRENGTH presented three hours of prime-time entertainment while raising awareness of MDA’s research and services missions, its sponsors and the people it serves. The show, which aired Sunday Sept. 2 and featured local segments produced by MDA’s “Love Network” stations, redefined the...
Whether it’s funding research, or providing services and health care, MDA is keenly focused on improving the lives of those we serve.
That’s why I’m really excited about our latest program: the MDA Neuromuscular Disease Registry. The registry, which will be launched in a number of MDA clinics by the end of this year, is a powerful tool for improving care, and ultimately, length and quality of...
Summer is here, my desert garden is drooping in the heat, and kids are fishing, horseback riding and having the times of their lives at MDA summer camps across the country. But as every school-age child knows, summer days will go whizzing past and in a blink of an eye, Labor Day will be here.