MDA Programs

News and updates from the MDA community

posted on July 14, 2015 - 3:05pm
Uniting Today for A Better Tomorrow: Building on the telethon’s rich history to achieve new ways to reach and connect families

Feedback from Quest readers and the MDA community

posted on July 14, 2015 - 3:01pm
Quest Summer 2015
Future focused Editor’s note: MDA’s announcement that it will no longer host an annual telethon in favor of channeling resources into other ways to raise funds and awareness for its families year-round has sparked many comments on Facebook. For more on this topic, see Uniting Today for a Better Tomorrow in Access MDA. 

MDA summer camp celebrates 60 years of awesome adventures for children with muscle disease

posted on April 21, 2015 - 9:23am
Quest Spring 2015
Ben Schussler loves to fish. So when he’s at MDA summer camp, he heads for the dock and casts his line as often as possible. “I catch two or three fish a day,” 8-year-old Ben boasts with glee in his little voice. Fishing is not a particularly unusual passion for a boy his age, although in Ben’s case, it isn’t something he thought he would — or could — ever enjoy.

Individuals with ALS and their families find unwavering support from MDA

posted on April 21, 2015 - 9:21am
Quest Spring 2015
Like all people living with amyotrophic lateral sclerosis (ALS), Joan Sucher, 65, a mother of three adult children in Ballwin, Mo., was devastated when she received her diagnosis. “My life collapsed,” Sucher shares in an email interview with Quest. “We were inconsolable. I had been healthy and active all my life. I ran regularly and finished nine half marathons after age 48. And I had no family...

News and updates from the MDA community

posted on April 21, 2015 - 9:05am
Quest Spring 2015
A True Advocate: Kristin Stephenson, MDA’s new vice president of Policy and Advocacy, discusses her new role and her personal connection to MDA

Celebrating scientific advancement, MDA summer camp and more

posted on April 21, 2015 - 9:00am
Quest Spring 2015
I am often asked what’s the single most important way we at MDA can best serve our families and best represent our donors. While MDA is delighted to provide an array of services and support, we believe our greatest opportunity for impact is to mobilize aggressively on the front lines in the discovery of treatments and cures. 

MDA Muscle Walk connects MDA families and raises critical funds for lifesaving treatments and cures. So are you ready to join us?

posted on January 5, 2015 - 9:25am
Quest Winter 2015
When Lizzie Chamberlain of Jacksonville, Ill., was 2 years old, her physical development relative to other children began to plateau — and then decline. Lizzie received a diagnosis of type 3 spinal muscular atrophy (SMA). 

MDA's Team Momentum made huge strides in its first year and is poised for more success in 2015

posted on January 5, 2015 - 9:17am
Quest Winter 2015
Through MDA’s Team Momentum program, participants in endurance races (marathons and half marathons) around the county help raise money to fight muscle disease. These participants receive world-class training, team camaraderie and support for their races, as well as tips and resources for fundraising.  In its inaugural year, 2014, Team Momentum and its dedicated participants enjoyed great...