The 46th annual MDA Labor Day Telethon is getting ready to squeeze 21½ hours of entertainment, awareness-building and fundraising into six prime-time hours on Sunday night, Sept. 4.
The shorter show, which is expected to draw more viewers in its prime-time slot, will be fast-paced and jam-packed with top-notch entertainment.
In addition to the shorter national broadcast, each hour of the local...
Spring has sprung in varying degrees around the country, a sure sign that summer’s not far behind. For many kids with neuromuscular diseases, summer can only mean one thing: “The Best Week of the Year!” — also known as MDA summer camp.
Originally titled in print: Peeking at 'the Cards You Were Dealt'
James Lupski’s story has all the elements of a good sci-fi tale: a research scientist determined to uncover the cause of his own genetic disease, a friend and colleague who’s also an intrepid gene hunter, and a futuristic technology that not only pinpoints the molecular cause of the research scientist’s disease, but also opens the door to a new era of personalized medicine.
But in this case, it’s...
Having a baby can be the most thrilling and rewarding experience of a woman’s life, yet it also can be fraught with fear and uncertainty. This is especially true for women with neuromuscular disease. This special report takes a look at the issues that arise for expectant mothers with muscle disease and finds that, with proper care and planning, these women are usually — although not always...
How a father led a quest to discover a treatment for his critically ill children, and ended up the subject of a major motion picture
Most anybody who hears John Crowley’s story will call him a hero.
It’s a logical label for a man who led a quest to develop a treatment to stop the disease killing two of his young children.
The Crowley family’s incredible story has been chronicled in the media, a book and now a major Hollywood feature film. “Extraordinary Measures” will be released Jan. 22 with an A-list cast that includes...
How assistive technology saved my career
Using the keyboard and mouse were becoming increasingly difficult for me. For a writer, that can spell the end of a career. But does it have to?
Insights from research, medicine, exercise experts and people with muscle diseases
I don’t exercise. If God had wanted me to bend over, he would have put diamonds on the floor. ~ Joan Rivers
Physical fitness is not only one of the most important keys to a healthy body, it is the basis of dynamic and creative intellectual activity. ~ John Fitzgerald Kennedy
If it weren’t for the fact that the TV set and the refrigerator are so far apart, some of us wouldn’t get any exercise...