Health Care

A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

posted on June 15, 2015 - 1:01pm
In recognition of June being National Myasthenia Gravis Awareness Month, MDA is examining the disease from several perspectives. This article offers an overview of signs, symptoms, diagnosis and treatments for myasthenia gravis (MG), as well as information on drugs that people with MG should avoid.

One-hour webinar, ‘Straightening the Growing Spine,” describes bracing and surgery options for children with a spinal curvature caused by a neuromuscular disorder

posted on January 25, 2013 - 10:23am
A one-hour, MDA-sponsored webinar features two physicians and the parent of a child with spinal muscular atrophy (SMA) who has undergone bracing and surgery for a spinal curvature, as well as questions and answers from listeners.

In the past, children with rapidly progressive neuromuscular scoliosis often underwent growth-stopping spinal fusion. Today, there are more options.

posted on January 7, 2013 - 10:51am
Quest Vol. 20, No. 1
Payton Mueller's parents knew something was amiss by the time he was 9 months old.

A physical therapist discusses changes in equipment and activities that spine-straightening surgery will likely require

posted on January 7, 2013 - 9:27am
Quest Vol. 20, No. 1
Tina Duong, a physical therapist at Children's National Medical Center in Washington, D.C., sees many children with neuromuscular disorders who undergo spine-straightening surgery.

A 29-year-old man with Duchenne MD has received a device to assist his heart's pumping ability

posted on October 16, 2012 - 4:17pm
A left ventricular assist device (LVAD), which helps the heart pump blood throughout the body, was implanted in the chest of a young man with Duchenne muscular dystrophy (DMD) at Cincinnati Children's Hospital Medical Center in September. The patient is 29-year-old Jason Williams, of Peebles, Ohio.

A database of clinical information can be a powerful tool for improving both quality of life and research

posted on October 1, 2012 - 9:10am
QUEST Vol. 19, No. 4
Update (Feb. 5, 2013): Authors from the University of Rochester Medical Center, the Muscular Dystrophy Association (MDA), the Cystic Fibrosis (CF) Foundation and the American Academy of Neurology reviewed current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD), and considered how monitoring and comparing outcomes measured across DMD clinics could lead to improved...
posted on October 1, 2012 - 9:00am
QUEST Vol. 19, No. 4
MDA’s ambassador artists help celebrate 20th anniversary

Longtime MDA research grantee Jerry Mendell discusses his group's development of a feasible strategy for screening newborn babies for Duchenne MD

posted on May 1, 2012 - 4:39pm
An April 2012 podcast from Nationwide Children's Hospital in Columbus, Ohio, explores the implications of a recently developed strategy for newborn screening for Duchenne muscular dystrophy (DMD). The podcast is part of a Nationwide Children's series called "This Month in Muscular Dystrophy."