Women with neuromuscular disorders need the same gynecologic care as other women — and sometimes more
Katrina Gossett knows the importance of gynecologic (pelvic) exams, but she is not eager to repeat her last exam experience.
Katrina Gossett, 29, has only had one gynecologic (pelvic) exam in her life, and it’s not an experience she’s eager to repeat.
A research study of the use of the CoughAssist machine is open to children and teens with Ullrich congenital muscular dystrophy or Bethlem myopathy
Children and adolescents with Ullrich congenital muscular dystrophy or Bethlem myopathy are invited to participate in a study of a daily breathing treatment regimen using a brand-name device called a CoughAssist.
The annual BMD conference, held in Baltimore and streamed live online, is centered on the theme ‘optimizing the lived experience of BMD’
MDA and John Hopkins Medicine will present the 2013 national Becker Muscular Dystrophy Conference Saturday, August 24, in Baltimore. Free to all participants with BMD and their family and friends, the conference can be attended in person or online.
One-hour webinar, ‘Straightening the Growing Spine,” describes bracing and surgery options for children with a spinal curvature caused by a neuromuscular disorder
A one-hour, MDA-sponsored webinar features two physicians and the parent of a child with spinal muscular atrophy (SMA) who has undergone bracing and surgery for a spinal curvature, as well as questions and answers from listeners.
In the past, children with rapidly progressive neuromuscular scoliosis often underwent growth-stopping spinal fusion. Today, there are more options.
Payton Mueller's parents knew something was amiss by the time he was 9 months old.
A physical therapist discusses changes in equipment and activities that spine-straightening surgery will likely require
Tina Duong, a physical therapist at Children's National Medical Center in Washington, D.C., sees many children with neuromuscular disorders who undergo spine-straightening surgery.
Treatments such as noninvasive mechanical ventilation, ACE inhibitors and corticosteroids have modified the natural disease course of Duchenne MD, leading to increased life span
Findings from a study of 516 Italian boys show a significant improvement over the last six decades in survival time in Duchenne muscular dystrophy (DMD). This modified natural history (general disease course) of DMD, the study team reported, stems from the application of a comprehensive therapeutic approach that emphasizes respiratory and cardiac (heart) care.