MDA Clinics

A database of clinical information can be a powerful tool for improving both quality of life and research

posted on October 1, 2012 - 9:10am
Update (Feb. 5, 2013): Authors from the University of Rochester Medical Center, the Muscular Dystrophy Association (MDA), the Cystic Fibrosis (CF) Foundation and the American Academy of Neurology reviewed current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD), and considered how monitoring and comparing outcomes measured across DMD clinics could lead to improved...
posted on October 1, 2012 - 9:00am
QUEST Vol. 19, No. 4
MDA’s ambassador artists help celebrate 20th anniversary

'Best practices' for treating various neuromuscular diseases are described in this third and final report on MDA's 2012 Clinical Conference

posted on April 19, 2012 - 6:00am
Several experts presented their views of "best practices" for care of people with neuromuscular disorders at MDA's 2012 Clinical Conference, held in Las Vegas March 4-7. Many questions remain about optimal care in these disorders, but it's clear that attention to heart and respiratory function are of paramount importance. This article looks at:

In this first of several reports on MDA's Clinical Conference, the role of genetics and immunology in different neuromuscular diseases is described

posted on March 19, 2012 - 3:08pm
More than 500 physicians, allied health care professionals and MDA staff attended the MDA's 2012 Clinical Conference in Las Vegas, March 4-7. The program emphasized:

The latest advances in diagnosis, medical management and the status of therapy development for neuromuscular diseases were covered at MDA's 2012 Clinical Conference

posted on March 9, 2012 - 2:28pm
The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.

Check out daily blogs from the conference, which will focus on genetics, immunology, best practices, clinic management and future therapies for neuromuscular diseases

posted on March 1, 2012 - 6:00am
Current trends and practices in the treatment of neuromuscular disease, and exciting new therapeutic developments will be the focus of MDA’s 2012 Clinical Conference March 4-7, at the South Point Hotel in Las Vegas. Although not open to the general public, the conference agenda and daily blogs about the proceedings will be available on the 2012 Clinical Conference website.

Pediatric cardiologists and other experts at an MDA-sponsored meeting exchanged information and planned studies regarding the heart in DMD and BMD

posted on January 28, 2011 - 2:10pm
posted on January 1, 2011 - 4:00pm
QUEST Vol. 18, No. 1
Susan Perlman, M.D., director of the Ataxia Clinic, Department of Neurology, University of California-Los Angeles, is a neurologist who’s been doing research in, and taking care of individuals with, Friedreich’s ataxia (FA) for some 30 years. In November 2010, she talked with Margaret Wahl, MDA’s medical and science editor.
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