Insurance and Costs

MDA has supported a total cost-of-illness study for three common neuromuscular disorders that may affect drug development and social and economic policies

posted on August 14, 2013 - 4:00am
"We now have numbers to point to," said Annie Kennedy, MDA's senior vice president of advocacy. "It's not just a back-of-the-envelope calculation anymore.

MDA has supported a total cost-of-illness study for three common neuromuscular disorders that may affect drug development and social and economic policies

posted on August 14, 2013 - 4:00am
"We now have numbers to point to," said Annie Kennedy, MDA's senior vice president of advocacy. "It's not just a back-of-the-envelope calculation anymore.

It will take time, organization and persistence, but in the end, chances are good the bill will get paid

posted on July 1, 2013 - 9:17am
Quest Vol. 20, No. 3
“Frustrating” is how people with neuromuscular diseases describe health insurance companies. Essential treatments are not paid because insurers say they are medically unnecessary. Then, after waiting weeks for responses to letters, and hours holding on the phone, the hospitals, doctors and insurance companies point at each other, but expect you to pay the bill!

If passed into law, the ABLE Act would create special savings accounts to be used for disability-related expenses without threatening other government benefits

posted on January 17, 2012 - 2:42pm

Government program lowers insurance premiums and relaxes eligibility standards for Americans with pre-existing health conditions

posted on June 3, 2011 - 3:26pm
In hopes of attracting more enrollees, the U.S. government is lowering premiums and easing eligibility requirements for its Pre-Existing Condition Insurance Plan (PCIP).
posted on January 1, 2011 - 3:29pm
QUEST Vol. 18, No. 1
Like it or not, some members of the MDA community will soon be trying out Medicare’s competitive acquisition program for “durable medical equipment, prosthetics, orthotics and supplies” (DMEPOS). The controversial program goes into effect in nine regions of the country this month.

Competitive bidding for durable medical equipment starts Jan. 1 despite criticism of the program; MDA is urging action and seeking feedback from those affected

posted on December 3, 2010 - 4:25pm
Competitive bidding among Medicare providers of durable medical equipment, prosthetics, orthotics and supplies (DMEPOS) is set to begin January 1 in nine regions of the country, despite sharp criticism of the plan by lawmakers, economists, patient advocates and others. Under the new procedures, DMEPOS providers must go through a competitive bidding process to win the right to serve Medicare...

The new health care reform law has many provisions of particular interest to people with disabilities

posted on March 23, 2010 - 1:08pm
The newly signed Patient Protection and Affordable Care Act, a dramatic reform of the health care system, contains numerous benefits for families living with neuromuscular disease.  The legislation, approved this week by both Houses of Congress, has features taking effect over the next several months that have implications for people with disabilities. These include expansion of insurance...