Exercise and Sports

Expert tips for shedding or adding weight to manage one's disease

posted on January 5, 2015 - 9:15am
Any health professional will tell you that good nutrition is a key to living well with and managing a neuromuscular disease. But what if the disease itself makes that goal hard to reach? That’s the all-too-common challenge many people with neuromuscular disorders face.  

The author’s weight loss surgery led her to start an exercise program that provided her with more muscle tone — and a lot of fun

posted on January 9, 2014 - 9:21am
Quest Winter 2014
To exercise or not to exercise? I can almost hear the people reading this article screaming, “NOT!” Truthfully, until about a year ago, I would have been screaming NOT the loudest, the longest and with absolutely no hesitation. Author Danise Armstrong riding her tricycle. Living with CMT

Neurologist Katherine Mathews discusses exercise in limb-girdle muscular dystrophy

posted on October 3, 2013 - 9:06am
Quest Vol. 20, No. 4
Neurologist Katherine Mathews Katherine Mathews is a neurologist at the University of Iowa Hospitals & Clinics in Iowa City, where she co-directs the MDA clinic. She recently discussed exercise in limb-girdle muscular dystrophy (LGMD) with MDA medical and science editor Margaret Wahl.

'Best practices' for treating various neuromuscular diseases are described in this third and final report on MDA's 2012 Clinical Conference

posted on April 19, 2012 - 6:00am
Several experts presented their views of "best practices" for care of people with neuromuscular disorders at MDA's 2012 Clinical Conference, held in Las Vegas March 4-7. Many questions remain about optimal care in these disorders, but it's clear that attention to heart and respiratory function are of paramount importance. This article looks at:

Participants share stories, learn about new research and get practical advice at third annual Becker MD conference

posted on August 18, 2011 - 3:50pm
Community and empowerment were the themes of the third annual Becker Muscular Dystrophy (BMD) conference held at Cedars-Sinai Medical Center in Los Angeles on August 13, 2011. Some 150 in-person attendees, and at least that many online attenders, engaged physicians, researchers, physical therapists and other BMD experts on a variety of topics, including the latest advances in research, medical...

Participants will be randomly assigned to a strength or stretching exercise program, and undergo multiple evaluations

posted on August 9, 2011 - 12:00am
Update June 19, 2013: This study is nearing completion. However, enrollment is still open and additional participants are needed.

Logan Mitzel, who has Duchenne muscular dystrophy, recently lived his dream of swimming with the 14-time Olympic gold medal champion

posted on March 8, 2011 - 1:06pm
Logan Mitzel has one word for his swim with Olympic champion Michael Phelps: “awesome.” The 11-year-old from Aurora, Ill., who has Duchenne muscular dystrophy (DMD) and relies on a manual wheelchair for mobility, loves to swim so much that in 2010 he completed a streak of swimming every day for 77 consecutive days.
posted on January 1, 2011 - 4:55pm
QUEST Vol. 18, No. 1
Melinda Guttry, a physical therapist in Rehabilitation Services at the University of California, Los Angeles Health System, has worked closely with neurologist Susan Perlman and with Friedreich's ataxia (FA) patients since the mid-1980s.