Neurologist Katherine Mathews discusses cardiac, respiratory and other concerns for people with limb-girdle muscular dystrophy
Neurologist Katherine Mathews
Katherine Mathews, M.D., is a neurologist at the University of Iowa Hospitals & Clinics in Iowa City, where she co-directs the MDA clinic. She serves on MDA's Medical Advisory Committee. Below she discusses limb-girdle muscular dystrophy with MDA Medical and Science Editor Margaret Wahl.
A nurse and genetic counselor, Trout discusses the diagnostic process and how she helps families with education and support
Nurse Christina Trout
Christina Trout is an advanced practice nurse specializing in pediatric neuromuscular disorders and genetic nursing. She's been providing genetic counseling, as well as general education and care coordination, to families with neuromuscular disorders at the University of Iowa since 1993.
The daylong, MDA-supported conference held Aug. 24, 2013, focused on all aspects of Becker muscular dystrophy; videos are now online
The 2013 MDA-supported Becker Muscular Dystrophy Conference, held Aug. 24 in Baltimore and co-hosted by MDA and Johns Hopkins Medicine, was "high-energy" with "phenomenal" presenters, says Annie Kennedy, MDA's senior vice president of advocacy, who attended and helped organize the meeting.
Some 130 people attended in person and many more, including some from outside the United States, attended...
The annual BMD conference, held in Baltimore and streamed live online, is centered on the theme ‘optimizing the lived experience of BMD’
MDA and John Hopkins Medicine will present the 2013 national Becker Muscular Dystrophy Conference Saturday, August 24, in Baltimore. Free to all participants with BMD and their family and friends, the conference can be attended in person or online.
MDA grant will support a study of prednisone in 25 boys with Duchenne muscular dystrophy who are less than 2½ years old
Pediatric neurologist Anne Connolly has received an MDA grant to study the effects of prednisone on Duchenne muscular dystrophy in very young children.
MDA has awarded a grant to Anne Connolly, a pediatric neurologist at Washington University in St.
MDA has supported a total cost-of-illness study for three common neuromuscular disorders that may affect drug development and social and economic policies
"We now have numbers to point to," said Annie Kennedy, MDA's senior vice president of advocacy. "It's not just a back-of-the-envelope calculation anymore.
It will take time, organization and persistence, but in the end, chances are good the bill will get paid
“Frustrating” is how people with neuromuscular diseases describe health insurance companies. Essential treatments are not paid because insurers say they are medically unnecessary. Then, after waiting weeks for responses to letters, and hours holding on the phone, the hospitals, doctors and insurance companies point at each other, but expect you to pay the bill!