The pace of research can seem unreasonably slow; here are a few reasons why
posted on January 1, 2012 - 3:11pm
John Porter from the National Institutes of Health likes to start talks by noting, “It’s a great time to be a mouse with a neuromuscular disease.” Exciting research results are regularly reported, where a treatment appears to cure one neuromuscular disease or another in a mouse — yet there are few treatments available today for people with any of these diseases, and only a few treatments in human...
posted on October 1, 2011 - 9:10am
Featured in this article: MDA website to honor caregivers * Get your flu shot * DECA and MDA celebrate their 30th anniversary
Participants share stories, learn about new research and get practical advice at third annual Becker MD conference
posted on August 18, 2011 - 3:50pm
Community and empowerment were the themes of the third annual Becker Muscular Dystrophy (BMD) conference held at Cedars-Sinai Medical Center in Los Angeles on August 13, 2011.
Some 150 in-person attendees, and at least that many online attenders, engaged physicians, researchers, physical therapists and other BMD experts on a variety of topics, including the latest advances in research, medical...
Participants will be randomly assigned to a strength or stretching exercise program, and undergo multiple evaluations
posted on August 9, 2011 - 12:00am
The National Institute of Neurological Disorders and Stroke (NINDS), part of the U.S. National Institutes of Health (NIH), is conducting a study to assess the safety and effectiveness of exercise in men with spinal-bulbar muscular atrophy (SBMA), also known as Kennedy disease.
The utility of exercise in this disease is uncertain.
Yearlong, MDA-supported study comparing two prednisone dosing schedules in Duchenne MD found similar benefits and side effects
posted on July 20, 2011 - 9:52am
A one-year, MDA-supported study comparing a weekend-only prednisone treatment schedule with a daily prednisone schedule in boys with Duchenne muscular dystrophy (DMD) has found that the two treatment regimens provide about the same benefits and have approximately the same side-effect profile.
The biggest problem at an ER may not be the one you go in with, but the one you encounter there
posted on July 1, 2011 - 4:18pm
When a medical emergency strikes — and the patient is a person with a neuromuscular disease — it’s not just getting to the emergency room quickly that’s critical. It’s also critical to ensure the ER staff understands the patient’s special needs caused by muscle disease.
Government program lowers insurance premiums and relaxes eligibility standards for Americans with pre-existing health conditions
posted on June 3, 2011 - 3:26pm
In hopes of attracting more enrollees, the U.S. government is lowering premiums and easing eligibility requirements for its Pre-Existing Condition Insurance Plan (PCIP).
