Workplace Issues

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...
posted on July 1, 2006 - 4:38pm
Time and a hip replacement had exacerbated the effects of Elizabeth Kimrey’s Charcot-Marie-Tooth disease (CMT). The 60-year-old psychologist, who uses a walker, was so fatigued that her doctor recommended she cut back from five to four days in her job at the North Carolina State University counseling center in Raleigh.

Will the real me please step forward?

posted on July 1, 2006 - 2:33pm
QUEST Vol. 13, No. 4
Have you ever been unable to enter the synagogue because it’s not wheelchair accessible? Or felt awkward at a dance for people with disabilities because of your sexual preference? Maybe your African-American community is pulling you one way and your disability community is pulling you the other way? Just remember that you’re not alone. Many people with disabilities are members of other minority...
posted on November 1, 2005 - 10:09am
QUEST Vol. 12, No. 6
Ergonomics is literally the study of work, so for this article, we’ll use the word “work” to describe extensive periods of time spent at your desk, whether you’re working, studying, typing really long love letters or playing computer games.

Federal program creates work incentive — if you're lucky enough to live in the right state.

posted on May 1, 2005 - 9:47am
Denise Weisenborn is an attorney who could be earning $150 an hour. Instead, she relies on Social Security Disability Insurance, and works only 13 hours a month at a much lower rate. Why? Because she has spinal muscular atrophy, and she needs the Medicaid health coverage that comes with SSDI. And she lives in Ohio where there’s no Medicaid Buy-in option.
posted on July 1, 2003 - 12:17pm
Mama might have taught you to be modest and retiring, but those qualities don't cut it when you're fighting the system. Successful advocacy demands that you believe you're entitled to have what you want, and that you squawk loudly enough to get it. But squawking is an art. Rude, angry squawking can lead straight to the chopping block. It takes finesse coupled with persistence — squawking in...

With a plan in place, you can get going when the going gets tough

posted on February 1, 2002 - 12:54pm
You're sitting at your desk at work and you suddenly detect the smell of smoke, along with sounds of confusion in the hallway. Someone sticks his head through the doorway of your eighth-floor office and tells you the building is on fire. What do you do?

Skills for the job of living

posted on September 30, 1999 - 5:00pm
This article, the first of a two-part series, focuses on occupational therapy for adults, in which the emphasis is on entry into or return to work, and social and self-care activities. Part 2 will discuss occupational and related therapies for children, in which the emphasis is on school, play and promoting physical and psychological development.