For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

Finding a new job for the summer in a new city and learning the value of embracing the unexpected

posted on October 8, 2015 - 9:31am
Quest Fall 2015
I decided to go to business school because I wanted to propel myself into a new career in a new industry. Leaving the tech world for the life sciences field would be no easy transition, and I realized a master’s degree would be my best way to accomplish this goal.

Growing up, Morrow, who has spinal muscular atrophy, had to fight to get people to listen to him; now they pay thousands of dollars for the privilege

posted on October 3, 2013 - 9:27am
Quest Vol. 20, No. 4
Self-confessed workaholic Jon Morrow is an entrepreneur and the CEO of — a company that grossed nearly half a million dollars last year and is expected to double that amount this year. Thirty-year-old Morrow has always been a smart overachiever, graduating from high school at 16, starting three businesses before he was 18 (two game-development companies and a software company...

Inspired by the one-armed drummer for Def Leppard, a musician with FSHD figured out a way to return to drumming

posted on July 1, 2012 - 12:00pm
QUEST Vol. 19, No. 3
John DeGeorge, 50, of Los Angeles, works as an IT (information technology) compliance consultant to make a living, but he lives to play the drums. “I think I was born with an interest in making music, or making noise,” he says. Being the son of a former drummer with the Glenn Miller Orchestra, such a passion for music must be in the genes.

Stacy Zoern liked the wheelchair-accessible Kenguru electric car from Hungary, so she started a Texas company to produce them

posted on February 22, 2012 - 3:23pm
Stacy Zoern has entered yet a new phase in her already eventful life — this time at 25 miles per hour.

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...

MDA's Personal Achievement Award recipient for New York City is thriving in the Big Apple

posted on September 8, 2011 - 8:57am
Tabitha Estrellado is living her dream. She’s a 27-year-old career woman with a nice apartment in Manhattan. She loves her job, has a sweet commute, and writes music and performs locally in her spare time.

Ralph Braun, who has spinal muscular atrophy, turned his scooter and modified van designs into a multimillion-dollar business

posted on June 14, 2011 - 2:30pm
QUEST Vol. 18, No. 3
Update (Feb. 12, 2013): Ralph Braun died peacefully at his home in Winamac, Ind., on Feb. 8, 2013, with his family at his side. He was 72 years old. Ralph Braun clearly remembers the day he learned he had “muscular dystrophy.”  The experience taught him a lesson that shaped who he is and helped drive him to achieve great success.