For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.
posted on January 1, 2008 - 2:59pm
QUEST Vol. 15, No. 1
NOTE: If your local bookstore doesn't have a book mentioned in Quest, usually it can be ordered through the store by providing the author's name, title and/or publisher. Often, books also can be ordered online. Reviewed books are not available through MDA. A Wing and a Prayer: An Artist’s Journey with Muscular Dystrophy by Barb Misheck, 191 pages, 2007, $19.95, PublishAmerica, www.publishamerica....
posted on July 1, 2007 - 11:24am
QUEST Vol. 14, No. 4
Preparing for and selecting colleges when you have neuromuscular disease is the subject of two Quest articles in the July-August 2007 issue: “The College Game" and “Want to Go to College?” For other Quest articles on college, see “College and Beyond.” General Resources

Finding the right school for you

posted on July 1, 2007 - 10:02am
QUEST Vol. 14, No. 4
For many, going to college is part of their game plan in life. But when muscle disease also is part of the game, there are disability-specific issues to consider when choosing the right college. This article and "Want to Go to College?" provide tips about college application and selection to help make the whole process a little more accessible, and lead you to a winning finish. Eyes wide open

Tips for building effective IEPs and improving your child’s educational experience

posted on March 1, 2007 - 10:14am
QUEST Vol. 14, No. 2
Whether it’s your first Individualized Educational Plan or your 10th, it never hurts to add some valuable tips to your IEP toolkit. Here are words of advice from parents and experts.
posted on January 1, 2007 - 4:13pm
QUEST Vol. 14, No. 1
Listening to the Experts: Students with Disabilities Speak Out, edited by Elizabeth B. Keefe, Ph.D., Veronica M. Moore, Ph.D., and Frances R. Duff, M.A., 218 pages, 2006, $19.95. Paul H. Brookes Publishing, (800) 638-3775, A message of inclusion resonates through the personal stories told by special education teachers, students and their parents in this book.
posted on February 1, 2002 - 4:42pm
A stress reliever Spencer Robedeaux, 12, seventh grade, Lancaster, Calif., Charcot-Marie-Tooth disease (CMT) Jenny Robedeaux wasn't sure she wanted to educate her son Spencer at home, but he insisted. Both mother and son have CMT, and Spencer also has diagnoses of attention deficit disorder (ADD), migraine headaches and depression.
posted on February 1, 2002 - 4:15pm
Unusual lives, unusual answers Kari Ginther, 19, college student, Raymond, Wash., Friedreich's ataxia (FA) Kari has experienced both homeschooling and homebound education. Her homebound experience was at the bottom of the scale, especially when compared to the two years she spent being homeschooled by her mother, Beth.