For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.

MDA delivers ‘a piece of camp’ after summer camp cancellations

posted on August 12, 2009 - 9:00pm

Even freshman orientation is more complicated for students with muscle diseases — and their parents

posted on July 1, 2009 - 2:52pm
QUEST Vol. 16, No. 3
Imagine 800 middle school students arriving for freshman orientation at Trabuco Hills High School in Southern California. All students are taking their first steps onto a campus four times the size of their current school, complete with swimming pool, tennis courts, a school store, vending machines and a gym with real wood flooring.

A new service seeks to improve electronic textbooks for college students

posted on February 8, 2009 - 4:43pm
Jeff Lester says electronic textbooks are “absolutely the biggest problem I have faced” in working toward his graduate degree. The 42-year-old student at the University of Dearborn-Michigan, who has ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease), has had to wait as long as five weeks after the start of class to receive an electronic version of the textbook. And then he has had to...

Ten scholarships offered to children of parents with disabilities

posted on January 28, 2009 - 10:22am
Ten $1,000 scholarships for high school seniors and college students whose parents have disabilities are being offered nationwide by the National Center for Parents with Disabilities and their Families (NCPDF). The scholarships will be awarded in fall of 2009. Applications must be completed and postmarked by March 16. NCPDF is the national agency of Through the Looking Glass, a San Francisco-...
posted on July 1, 2008 - 3:01pm
QUEST Vol. 15, No. 4
Letters to the editor discuss overcoming obstacles, facing everyday difficulties, and sleepiness and the drug Provigil.

Duchenne MD student photographs with hybrid wheelchair rig

posted on July 1, 2008 - 1:41pm
QUEST Vol. 15, No. 4
I teach a digital media class at a middle school in Everett, Wash. In this class, students learn all about digital photography and video production, including photo composition, script writing and computer editing. In addition to creating projects based on their own ideas, the students photograph the daily activities occurring at the school and produce daily newscasts transmitted via closed...
posted on March 1, 2008 - 3:39pm
QUEST Vol. 15, No. 2
State and federal law requires school districts to provide assistive technology (AT) and specialized instruction for learning disabilities (LD) to qualifying students. But parents may have a difficult time convincing their school districts that these services will benefit their child. Parents stand a better chance of getting special services if they know what to ask for, why they’re asking for it...