Education

For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.
posted on March 31, 2010 - 5:32pm
QUEST Vol. 17, No. 2
Bookshare, the world’s largest online library of accessible books and periodicals, is free for students with qualified “print disabilities,” which include difficulty holding a book or turning pages. Bookshare offers more than 60,000 books, textbooks and teacher-recommended reading in accessible formats.
posted on March 31, 2010 - 11:42am
QUEST Vol. 17, No. 2
Remember your elementary and middle school years? How often did adults ask you what you wanted to be when you grew up or where you wanted to go to college? These early educational years are the perfect time to plant seeds of self-purpose and self-advocacy.

A college student with SMA wonders if newer technology can compensate for progressive muscle weakness

posted on March 31, 2010 - 11:05am
QUEST Vol. 17, No. 2
Going back to school is hard, especially when you’re 51 years old and going back for your bachelor’s degree. I grew up with type 3 spinal muscular atrophy, so I understand and can deal with my disability. But every year I get weaker, so I continue to need to find ways to compensate and — in the case of going back to school — to figure out such problems as handling my textbooks, taking notes and...

Read a chapter from Incight's college guide for students with disabilities

posted on March 31, 2010 - 10:57am
QUEST Vol. 17, No. 2
Incight is a nonprofit agency dedicated to helping students with disabilties by providing scholarships, assistance finding mentors and internships, and other resources. Click on the title below to read the "Finding Care Givers" chapter from Incight's guide book "Getting Ready for Life at College."  (The full guide can be ordered through Incight.)  Incight College Guide: Finding Care...

Get a free higher education from prestigious schools (minus the degree)

posted on March 27, 2010 - 5:21pm
QUEST Vol. 17, No. 2
If online courses sound interesting but you’re not looking to earn a degree, plenty of options exist for pursuing passions, exploring issues and diving into intellectual interests – and many of them are free. Searching for “OpenCourseWear” — or OCW — will yield a treasure trove of course materials from prestigious universities and colleges posted online for public consumption.

A GPS for students with disabilities

posted on March 27, 2010 - 4:55pm
QUEST Vol. 17, No. 2
MDA's Public WebEx , held on February 24, 2010, featured panelists Chris Rosa (Becker muscular dystrophy); L. Vance Taylor (limb-girdle muscular dystrophy) and Angela Wrigglesworth (spinal muscular atrophy) speaking about going to college with a neuromuscular disease. Visit MDA's  School Advocacy Resources page to see:

Scholarships for students with disabilities are available from two organizations — but deadlines are fast approaching

posted on March 5, 2010 - 9:55am
Application deadlines are fast approaching for two scholarships for students with disabilities, offered by two organizations run by people with forms of muscular dystrophy. Both organizations – Incight and Deshae Lott Ministries -- require applicants to submit documentation of disability, confirmation of acceptance at a qualifying educational institution, and letters of recommendation. More...