Education

For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.

As your child's needs change, so will his or her school experience

posted on July 1, 2012 - 3:03pm
QUEST Vol. 19, No. 3
No matter what grade your child is about to enter this fall, you will have all the concerns of every parent — and a whole lot more because of your child’s neuromuscular disease. There are ways to make the transition to a new school year smoother — and MDA can help. Getting started Before the school year starts, make an appointment to visit your child’s new teacher and scope out the school. Talk...
posted on April 9, 2012 - 12:00pm
QUEST Vol. 19, No. 2
Spring is in the air, and you know what that means — it’s time to prepare for your child’s IEP or 504 plan meeting. Whether you’re just getting started or you’re an old pro, it’s always a good idea to get your game plan ready ahead of time. To help alleviate the stress that can go along with IEP meetings, here’s a roundup of some useful resources that can strengthen your IEP/504 plan toolkit and...
posted on April 9, 2012 - 11:15am
QUEST Vol. 19, No. 2
Ron Hayes didn't get a diagnosis of type 1 myotonic dystrophy (MMD1 or DM1) until he was 54, long after he had enjoyed academic and athletic success in high school and college, had earned a master's degree in public health, had married and had children, and had established himself in a career.

Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults

posted on October 1, 2011 - 3:32pm
QUEST Vol. 18, No. 4
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.” His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp. “We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...

The Desktop Desk helped a California student with DMD finish school despite diminished hand and arm strength

posted on October 1, 2011 - 8:15am
QUEST Vol. 18, No. 4
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities. Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.