Transition Programs

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...
posted on January 1, 2012 - 12:14pm
QUEST Vol. 19, No. 1
On a beautiful autumn day in September, six accomplished adults came to Washington, D.C., representing the voice and experience of hundreds of others who share the common experience of being adults living with “pediatric-onset” neuromuscular disorders. “We were the generation that was hoped for — and now we’re here,” said Vance Taylor, 33, a homeland security consultant from Washington, D.C., who...

Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults

posted on October 1, 2011 - 3:32pm
QUEST Vol. 18, No. 4
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.” His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp. “We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...

Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers

posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA. MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.
posted on October 1, 2009 - 3:10pm
QUEST Vol. 16, No. 4
Q: What could possibly be bad about children with neuromuscular diseases living longer life spans than has been common in the past? A: As these children become adolescents and then adults, they encounter a medical system and society that are not prepared to accommodate them.
posted on April 1, 2009 - 3:27pm
QUEST Vol. 16, No. 2
Annie Kennedy Meet my friend, Vance. Vance is a 30-something man, a “people person,” husband, father, homeowner, accomplished professional with multiple degrees from prestigious universities, and valued community member, friend and employee.
posted on November 1, 2004 - 4:12pm
Chris Buhl, 24, of Sioux Falls, S.D., has traveled the road to independence. Photos by Brett Jorgensen