Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults
posted on October 1, 2011 - 3:32pm
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.”
His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp.
“We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...
Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers
posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA.
MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...
posted on July 1, 2011 - 2:11pm
ADA: More info
Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.
posted on October 1, 2009 - 3:10pm
Q: What could possibly be bad about children with neuromuscular diseases living longer life spans than has been common in the past?
A: As these children become adolescents and then adults, they encounter a medical system and society that are not prepared to accommodate them.
posted on April 1, 2009 - 3:27pm
Annie Kennedy
Meet my friend, Vance. Vance is a 30-something man, a “people person,” husband, father, homeowner, accomplished professional with multiple degrees from prestigious universities, and valued community member, friend and employee.
posted on November 1, 2004 - 4:12pm
Chris Buhl, 24, of Sioux Falls, S.D., has traveled the road to independence. Photos by Brett Jorgensen
