posted on March 31, 2010 - 10:20pm
Jacob Gapko has compiled the first-ever bibliography of books about young people with muscular dystrophy, with help from a Carnegie-Whitney Award from the American Library Association.
Click on the title to access the bibliography:
Children and Young Adults with Muscular Dystrophy: An Annotated Bibliography
The PACER Center reviews several e-readers
posted on March 31, 2010 - 5:49pm
For people with reading-related disabilities, e-book readers can provide easy access to a world of literature and information. These portable devices store and read electronic books, and their accessibility features can include text-to-speech, audio-supported navigation, and enlarged print. Not all the devices offer all those features, however, so consumers need to shop carefully to find the e-...
posted on March 31, 2010 - 5:32pm
Bookshare, the world’s largest online library of accessible books and periodicals, is free for students with qualified “print disabilities,” which include difficulty holding a book or turning pages. Bookshare offers more than 60,000 books, textbooks and teacher-recommended reading in accessible formats.
posted on April 1, 2009 - 3:08pm
Some students with muscle diseases have IEPs (Individualized Education Plans) and some have 504 plans. What’s the difference? Should parents be concerned if the school says their child doesn’t qualify for an IEP, and creates a 504 plan instead — or vice versa?
Not necessarily. As the accompanying chart and diagram shows, there’s a lot of overlap between the two plans. The key is for parents to be...
Specialists, support groups and stimulant medications help families cope with the unusual cognitive and personality effects of type 1 myotonic dystrophy
posted on September 1, 2008 - 2:27pm
*Many people interviewed for this article asked not to be identified to protect the privacy of affected family members.
“Everybody knows the word apathy,” says a California woman whose 25-year-old daughter’s type 1 myotonic dystrophy (MMD1, sometimes called DM1) was diagnosed just a few years ago. “People use the word loosely. I don’t think it does justice to the reality of this disease.”
posted on March 1, 2008 - 4:05pm
Below are some additional resources to help parents get the most they can out of the IEP process.
posted on March 1, 2008 - 3:39pm
State and federal law requires school districts to provide assistive technology (AT) and specialized instruction for learning disabilities (LD) to qualifying students.
But parents may have a difficult time convincing their school districts that these services will benefit their child.
Parents stand a better chance of getting special services if they know what to ask for, why they’re asking for it...
