IEP and 504 Plans (K-12)

The answer is a resounding 'maybe'

posted on July 1, 2013 - 9:12am
Ever wonder if your child with a neuromuscular disease would do better in a different learning environment, but don’t know what else is out there? One option may be a charter school — or maybe not. Charter schools are public schools

As your child's needs change, so will his or her school experience

posted on July 1, 2012 - 3:03pm
QUEST Vol. 19, No. 3
No matter what grade your child is about to enter this fall, you will have all the concerns of every parent — and a whole lot more because of your child’s neuromuscular disease. There are ways to make the transition to a new school year smoother — and MDA can help. Getting started Before the school year starts, make an appointment to visit your child’s new teacher and scope out the school. Talk...
posted on April 9, 2012 - 12:00pm
QUEST Vol. 19, No. 2
Spring is in the air, and you know what that means — it’s time to prepare for your child’s IEP or 504 plan meeting. Whether you’re just getting started or you’re an old pro, it’s always a good idea to get your game plan ready ahead of time. To help alleviate the stress that can go along with IEP meetings, here’s a roundup of some useful resources that can strengthen your IEP/504 plan toolkit and...

The Desktop Desk helped a California student with DMD finish school despite diminished hand and arm strength

posted on October 1, 2011 - 8:15am
QUEST Vol. 18, No. 4
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities. Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...
posted on March 31, 2011 - 10:35am
QUEST Vol. 18, No. 2
Looking for help as you prepare to meet with your child’s school about individual education plans (IEPs) or 504 Plans, both of which provide accommodations for students with disabilities? Well, you've come to the right place. The following list of IEP and 504 plan resources will help you get started and moving in the right direction. If you can't print this list, contact your local MDA office to...

The PACER Center reviews several e-readers

posted on March 31, 2010 - 5:49pm
QUEST Vol. 17, No. 2
For people with reading-related disabilities, e-book readers can provide easy access to a world of literature and information. These portable devices store and read electronic books, and their accessibility features can include text-to-speech, audio-supported navigation, and enlarged print. Not all the devices offer all those features, however, so consumers need to shop carefully to find the e-...
posted on March 31, 2010 - 11:42am
QUEST Vol. 17, No. 2
Remember your elementary and middle school years? How often did adults ask you what you wanted to be when you grew up or where you wanted to go to college? These early educational years are the perfect time to plant seeds of self-purpose and self-advocacy.

Even freshman orientation is more complicated for students with muscle diseases — and their parents

posted on July 1, 2009 - 2:52pm
QUEST Vol. 16, No. 3
Imagine 800 middle school students arriving for freshman orientation at Trabuco Hills High School in Southern California. All students are taking their first steps onto a campus four times the size of their current school, complete with swimming pool, tennis courts, a school store, vending machines and a gym with real wood flooring.