College and Beyond

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...
posted on January 1, 2007 - 1:46pm
QUEST Vol. 14, No. 1
In 2004, I was referred to the Center for Applied Rehabilitation Technology (CART) in Downey, Calif., by the state Vocational Rehabilitation office as part of my preparation to attend college. Although my college plans didn't work out, my visit to CART opened many doors of independence, encouragement and hope. I came home with all kinds of ideas that December day, and CART's thorough evaluation...
posted on March 1, 2006 - 9:41am
QUEST Vol. 13, No. 2
Scott Hatley As we race through the 21st century, instead of looking in the rearview mirror, Scott Hatley is thinking about tomorrow. He’s the man with a plan and a solution. Here’s Hatley’s Incight.
posted on July 1, 2005 - 2:11pm
QUEST Vol. 12, No. 4
Let’s be honest: There aren’t many positive aspects to living with a disability. I trip. I fall. Reality sucks. Life’s miserable. Disability ruined my life and undermined my independence. These pessimistic thoughts dominated my life for almost 11 years after I received a diagnosis of Friedreich’s ataxia (FA) in 1994. But recently I’ve come to realize that these negative aspects distort the...
posted on November 1, 2004 - 4:23pm
You may be getting ready to graduate from high school, re-evaluating your life as an adult living with Mom and Dad, or starting over after the death of a spouse who took care of you for 25 years. For people with neuromuscular diseases, it can take a lot of effort to achieve independence. What's independence? When you're independent, you're in charge of your life. You make your own decisions...
posted on November 1, 2004 - 4:12pm
Chris Buhl, 24, of Sioux Falls, S.D., has traveled the road to independence. Photos by Brett Jorgensen
posted on September 1, 2004 - 2:56pm
When I was 18, I informed my doctor I'd be attending college in the fall. Later, he asked to speak to my parents privately. He told them it was nice that I was going to college but, because I had Duchenne muscular dystrophy (DMD), they shouldn't expect me to survive to graduate. Well, I finished college. I'm now almost 40 years old and working as a software engineer. Ironically, five years after...
posted on May 1, 2004 - 4:37pm
On Sept. 7, 1994, my husband, Curry, and I returned home from our appointment with the neurologist. We were stunned, shocked by the diagnosis of amyotrophic lateral sclerosis (ALS or Lou Gehrig's disease) and the prognosis that I had three years to live. I was 36. The ultimate procrastinator, I had done nothing with my life. No family, no successful career — nothing lasting or memorable.