College and Beyond

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

A college student with SMA wonders if newer technology can compensate for progressive muscle weakness

posted on March 31, 2010 - 11:05am
QUEST Vol. 17, No. 2
Going back to school is hard, especially when you’re 51 years old and going back for your bachelor’s degree. I grew up with type 3 spinal muscular atrophy, so I understand and can deal with my disability. But every year I get weaker, so I continue to need to find ways to compensate and — in the case of going back to school — to figure out such problems as handling my textbooks, taking notes and...

Read a chapter from Incight's college guide for students with disabilities

posted on March 31, 2010 - 10:57am
QUEST Vol. 17, No. 2
Incight is a nonprofit agency dedicated to helping students with disabilties by providing scholarships, assistance finding mentors and internships, and other resources. Click on the title below to read the "Finding Care Givers" chapter from Incight's guide book "Getting Ready for Life at College."  (The full guide can be ordered through Incight.)  Incight College Guide: Finding Care...

Get a free higher education from prestigious schools (minus the degree)

posted on March 27, 2010 - 5:21pm
QUEST Vol. 17, No. 2
If online courses sound interesting but you’re not looking to earn a degree, plenty of options exist for pursuing passions, exploring issues and diving into intellectual interests – and many of them are free. Searching for “OpenCourseWear” — or OCW — will yield a treasure trove of course materials from prestigious universities and colleges posted online for public consumption.

A GPS for students with disabilities

posted on March 27, 2010 - 4:55pm
QUEST Vol. 17, No. 2
MDA's Public WebEx , held on February 24, 2010, featured panelists Chris Rosa (Becker muscular dystrophy); L. Vance Taylor (limb-girdle muscular dystrophy) and Angela Wrigglesworth (spinal muscular atrophy) speaking about going to college with a neuromuscular disease. Visit MDA's  School Advocacy Resources page to see:

Scholarships for students with disabilities are available from two organizations — but deadlines are fast approaching

posted on March 5, 2010 - 9:55am
Application deadlines are fast approaching for two scholarships for students with disabilities, offered by two organizations run by people with forms of muscular dystrophy. Both organizations – Incight and Deshae Lott Ministries -- require applicants to submit documentation of disability, confirmation of acceptance at a qualifying educational institution, and letters of recommendation. More...

Dec. 31, 2009, is the deadline to apply for the 2010 Emerging Leaders Summer Internship Program for College Students with Disabilities.

posted on December 16, 2009 - 6:50pm
Summer internships are available for college students with disabilities - but students must act quickly to apply. Dec. 31, 2009 is the deadline to apply to the 2010 Emerging Leaders Summer Internship Program for College Students with Disabilities, a highly competitive program that places undergraduate and graduate students with disabilities in fulfilling summer internships and provides leadership...

A college freshman in a power chair is the first in her school’s history to go through sorority ‘rush’

posted on December 10, 2009 - 6:16pm
On one of her first days at the University of Missouri, freshman Gabriella Garbero achieved campus-wide notoriety when her father Matt passed out in her dormitory. He wasn’t impaired -- other than being dehydrated and not having eaten for most of the day, and having diabetes, which he found out about from that experience. The stress of helping his daughter get settled into college life probably...