College and Beyond

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases

posted on August 7, 2012 - 9:15am
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar. MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.

Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults

posted on October 1, 2011 - 3:32pm
QUEST Vol. 18, No. 4
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.” His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp. “We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.

A nonprofit led by a teacher and minister with limb-girdle MD again is offering postgraduate scholarships and small quality-of-life grants

posted on April 8, 2011 - 4:57pm
(Update 9/14/11: The 2011 scholarship winners have been selected. To view a list of winners visit www.deshae.org/cmms/awards/2011/scholars.pdf. Applications for quality of life grants continue to be accepted and are awarded on an ongoing basis.)

A writer with muscle weakness borrows an iPad, and evaluates the pros and cons of this innovative technology

posted on October 1, 2010 - 4:55pm
QUEST Vol. 17, No. 4
The iPad is extremely thin and portable. But at 1.5 pounds, it was still a bit heavy for the author to hold easily.

Winners with ALS, SMA and LGMD receive support to pursue postgraduate education

posted on September 17, 2010 - 2:29pm
Three accomplished scholars determinedly pursuing their educations while living with neuromuscular disease are the first winners of the CMMS Deshae Lott Ministries outreach program scholarships. “We were so impressed,” with the winning candidates, said Deshae Lott, 39, a teacher and minster from Bossier City, La., who founded the nonprofit that bears her name. “These three show great strength of...