Butting in with a view on employment
Considering the title of this column, From Where I Sit, I’m surprised more people have not written about butts. After all, for those of us wheeling around at a seated height — I live with type 2 spinal muscular atrophy (SMA) — other people’s butts are often what we see from where we sit.
News and updates from the MDA community
Shining STAR: The MD STARnet project expands to learn more about neuromuscular disease
A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19.
Hurry — deadline to apply is Feb. 18
If you are a college student or recent graduate with a disability and are interested in a career in international affairs, there’s a new internship program launching this summer in Washington, D.C. However, if you want to be considered, you’ll need to hurry — the online deadline is February 18.
CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.
Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar.
MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.
Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.”
His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp.
“We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...