College and Beyond

For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.

Butting in with a view on employment

posted on January 5, 2015 - 9:23am
Quest Winter 2015
Considering the title of this column, From Where I Sit, I’m surprised more people have not written about butts. After all, for those of us wheeling around at a seated height — I live with type 2 spinal muscular atrophy (SMA) — other people’s butts are often what we see from where we sit. 

News and updates from the MDA community

posted on January 5, 2015 - 9:05am
Quest Winter 2015
Shining STAR: The MD STARnet project expands to learn more about neuromuscular disease

A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams

posted on January 9, 2014 - 9:31am
Quest Winter 2014
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19. 

Hurry — deadline to apply is Feb. 18

posted on January 30, 2013 - 10:11am
If you are a college student or recent graduate with a disability and are interested in a career in international affairs, there’s a new internship program launching this summer in Washington, D.C.  However, if you want to be considered, you’ll need to hurry — the online deadline is February 18.

CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012

posted on October 5, 2012 - 4:55pm
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.

Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases

posted on August 7, 2012 - 9:15am
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar. MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.

Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults

posted on October 1, 2011 - 3:32pm
QUEST Vol. 18, No. 4
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.” His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp. “We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...