Daily Living

Helpful tips to minimize end-of-year stress and maximize the spirit of the season

posted on October 8, 2015 - 9:37am
As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation and social gatherings, the holidays can be a source of increased stress. Anyone can feel overwhelmed this festive time of year, but for people living with neuromuscular diseases, managing the additional activities and expenses is crucial to maintaining...

CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012

posted on October 5, 2012 - 4:55pm
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.

Caregiving is more than physical care; it’s opening the world to your loved one

posted on October 1, 2012 - 9:30am
QUEST Vol. 19, No. 4
“What do you want to eat for dinner?” “I don’t know. What do we have?” This very common question and response is undoubtedly heard in many households on a daily basis. Whoever does the shopping and cooking has a pretty good idea what’s in the kitchen cabinets but, otherwise, each person generally goes and stares into the cabinets or refrigerator searching for a reply. Sometimes you’ll even catch...

We all want to look our best, even when grooming is a ‘monumental chore’

posted on October 1, 2012 - 9:20am
QUEST Vol. 19, No. 4
Lather. Rinse. Repeat. Sounds easy enough. Unless there’s a neuromuscular disease involved. Then it can become one more monumental chore, along with all the other daily required grooming tasks.

'If I have a voice, I’m going to use it' says Jonathan Porter, MDA’s Personal Achievement Award recipient for 2013

posted on October 1, 2012 - 9:05am
QUEST Vol. 19, No. 4
Jonathan Porter has a problem with the word limitation. “Sure, people with muscular dystrophy have limitations,” he says, “but hey, everyone has limitations — whether you’re in a wheelchair or you’re too short or too skinny — we all have limitations. I say, don’t look at what you have as a limitation, look at it as who you are and get on with your life.” It doesn’t take long to realize this...

Professional home care providers can reduce family caregiver burnout while providing individualized service and greater independence for loved ones

posted on October 1, 2012 - 9:00am
QUEST Vol. 19, No. 4
Jeff Stafsholt is a Green Bay Packers fan second to none. Like the Wisconsin football champs, he has a winning attitude and a “never give up” mindset. To help manage the effects of limb-girdle muscular dystrophy, Jeff has a team of home care professionals who assist the 34-year-old as he independently quarterbacks his life.
posted on October 1, 2012 - 9:00am
QUEST Vol. 19, No. 4
The ‘power’ of soccer
posted on October 1, 2012 - 9:00am
QUEST Vol. 19, No. 4
When our family travels, we prefer driving to flying. Driving, in our wheelchair-accessible minivan, is simply easier. I have Charcot-Marie-Tooth disease (CMT) and use a large, bulky electric wheelchair. If traveling by air, I forgo my independence and take a smaller manual wheelchair.