Daily Living

Helpful tips to minimize end-of-year stress and maximize the spirit of the season

posted on October 8, 2015 - 9:37am
As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation and social gatherings, the holidays can be a source of increased stress. Anyone can feel overwhelmed this festive time of year, but for people living with neuromuscular diseases, managing the additional activities and expenses is crucial to maintaining...

For the sixth year, volunteer veterinary ophthalmologists in the U.S., Canada and Puerto Rico will provide free eye exams for qualified service animals

posted on April 9, 2013 - 5:46pm
Registration is now open for the Sixth Annual ACVO/Merial Service Dog Eye Exam Event, which offers free eye exams for service animals during the month of May.

On being treated as a person first during hospitalizations

posted on April 1, 2013 - 9:19am
Quest Vol. 20, No. 2
MJ Purk Individuals with neuromuscular disorders oftentimes spend a great deal of time in the hospital and even more time interacting with those who work in the medical profession. In their interactions with medical personnel, some individuals are lucky enough to experience more than the expected amount of caring.
posted on April 1, 2013 - 9:15am
Quest Vol. 20, No. 2
Note: Click on photos to enlarge.

People with MD have an increased risk of falling and decreased ability to recover muscle after injury; these strategies and products can help in ice and snow

posted on February 8, 2013 - 11:27am
Winter can be a beautiful time of year — especially when you're inside under a warm blanket, drinking hot cocoa and looking out the window at the glistening white and the snow-coated branches. Unfortunately, most people have to carry out their daily lives regardless of slippery conditions. Slipping and falling are hazards for everyone in winter weather, but for people with neuromuscular...

One-hour webinar, ‘Straightening the Growing Spine,” describes bracing and surgery options for children with a spinal curvature caused by a neuromuscular disorder

posted on January 25, 2013 - 10:23am
A one-hour, MDA-sponsored webinar features two physicians and the parent of a child with spinal muscular atrophy (SMA) who has undergone bracing and surgery for a spinal curvature, as well as questions and answers from listeners.

An upcoming webinar from the Medicare Rights Center explores all aspects of Medicare coverage of durable medical equipment such as wheelchairs and hospital beds

posted on January 23, 2013 - 4:00pm
Durable medical equipment (DME), such as wheelchairs, walkers, portable oxygen devices and hospital beds, can be very expensive — and the process for obtaining them from Medicare can be very confusing.  Learn about Medicare coverage of DME and get the latest information on obtaining such equipment in a webinar Tuesday, Jan. 29, from 2 to 3 p.m. Eastern time.   “Medicare Coverage of...

From his first washing-machine-sized vent to his current ‘toy’ model, writer Mike Murphy has borne witness to the evolution of a lifesaving technology

posted on January 7, 2013 - 9:25am
Quest Vol. 20, No. 1
For some reason, June 27 keeps popping up in my family’s history. June 27, 1889, was my grandfather’s birthday. It was also the date upon which he married my  grandmother, 20-some years later. On a far less significant — but fun — note: It was on June 27, 1977, that my parents loaded me up in our powder blue Pinto station wagon, and took me to the movie theater to see the original “Star Wars...