Daily Living

Helpful tips to minimize end-of-year stress and maximize the spirit of the season

posted on October 8, 2015 - 9:37am
As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation and social gatherings, the holidays can be a source of increased stress. Anyone can feel overwhelmed this festive time of year, but for people living with neuromuscular diseases, managing the additional activities and expenses is crucial to maintaining...
posted on July 1, 2013 - 9:09am
Quest Vol. 20, No. 3
Note: Click on photos to enlarge.

The gnawing need for meaningful relationships is a survival signal. Just like a fever, it should not be ignored.

posted on July 1, 2013 - 9:08am
Quest Vol. 20, No. 3
People need people. Human beings are wired to be a part of something more than themselves, instinctively uniting as couples, bonding as families, joining groups, building cities and creating civilizations. A social species, people who are forced to live in isolation or even just perceived social isolation (loneliness) do not fare well.

The Ms. Wheelchair America program gives women with disabilities a platform for breaking down barriers and promoting important change

posted on July 1, 2013 - 9:07am
Quest Vol. 20, No. 3
Wanted: Articulate, dynamic, driven women with a strong vision for change in the world. Must be willing to break down barriers and connect with people of all backgrounds. Public speaking and statewide travel required. Candidates will be provided with expert training in handling media inquiries, optimizing social media networking, public speaking, current legislative and public policy trends, self...
posted on July 1, 2013 - 9:01am
Quest Vol. 20, No. 3
IBM patient survey

In the 1970s, Elyse Bruce saw her teenage brother deal with MG — but in the 2000s, she struggled to find a diagnosis for her young son’s mysterious symptoms

posted on June 25, 2013 - 11:42am
I was a pre-teen in the 1970s when my older brother began having problems. My parents thought he was just hitting those teen years when rebellion is the word of the day. He went from being an excellent clarinetist to a mediocre one, and the more he practiced, the worse he sounded. He would get up from the supper table and fall into the wall; my parents asked him straight out if he was on drugs.

Carmelita Pallares, 31, of Albuquerque, New Mexico, finds ways to conserve precious energy so she can care for her toddler daughter

posted on June 25, 2013 - 11:37am
My name is Carmelita Pallares. I am Native American; I am a member of both the Navajo Nation and Santo Domingo Pueblo tribe. I am 31 years old. I was diagnosed seven years ago with myasthenia gravis, only three months after having emergency surgery and undergoing a temporary colostomy following an accident. My neurologist believed that the trauma my body suffered from this accident and the stress...

Rachel Pegram, 38, of Charlotte, N.C., shares her experiences and advice after 25 years of living with MG

posted on June 25, 2013 - 11:28am
I never expected that my life would change at 13. It was at age 13 that I got a bad case of chicken pox. Shortly thereafter, my arms and legs started not working right. I couldn’t climb the school bus stairs or lift my arms to brush my hair. In 1988, after a bad tumble down the school stairs because my legs gave out on me, my parents took me to see a neurologist.