Daily Living

Helpful tips to minimize end-of-year stress and maximize the spirit of the season

posted on October 8, 2015 - 9:37am
As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation and social gatherings, the holidays can be a source of increased stress. Anyone can feel overwhelmed this festive time of year, but for people living with neuromuscular diseases, managing the additional activities and expenses is crucial to maintaining...

Neurologist Katherine Mathews discusses exercise in limb-girdle muscular dystrophy

posted on October 3, 2013 - 9:06am
Quest Vol. 20, No. 4
Neurologist Katherine Mathews Katherine Mathews is a neurologist at the University of Iowa Hospitals & Clinics in Iowa City, where she co-directs the MDA clinic. She recently discussed exercise in limb-girdle muscular dystrophy (LGMD) with MDA medical and science editor Margaret Wahl.
posted on October 3, 2013 - 9:03am
Quest Vol. 20, No. 4
Although it was difficult in the beginning, Carol Abraham says she doesn't give wearing her braces a second thought anymore. Carol Abraham, 52, of Twin Lakes, Wis., is a retired occupational therapist who enjoys doing crafts and teaching at her church.

The daylong, MDA-supported conference held Aug. 24, 2013, focused on all aspects of Becker muscular dystrophy; videos are now online

posted on September 11, 2013 - 12:15pm
The 2013 MDA-supported Becker Muscular Dystrophy Conference, held Aug. 24 in Baltimore and co-hosted by MDA and Johns Hopkins Medicine, was "high-energy" with "phenomenal" presenters, says Annie Kennedy, MDA's senior vice president of advocacy, who attended and helped organize the meeting. Some 130 people attended in person and many more, including some from outside the United States, attended...

MDA advocacy efforts are focused on accelerating research advances and treatment discovery while expanding the resources available to those affected with the disease

posted on August 29, 2013 - 10:37am
Today, research discoveries are bringing us closer than ever to effective therapies for spinal muscular atrophy (SMA) and other neuromuscular diseases. Medical knowledge of neuromuscular disease is broadening, and children and adults with these diseases are living longer, fuller lives. But significant challenges remain.

The annual BMD conference, held in Baltimore and streamed live online, is centered on the theme ‘optimizing the lived experience of BMD’

posted on August 22, 2013 - 12:31pm
MDA and John Hopkins Medicine will present the 2013 national Becker Muscular Dystrophy Conference Saturday, August 24, in Baltimore. Free to all participants with BMD and their family and friends, the conference can be attended in person or online.

'Monkey helpers' perform daily tasks that allow people with disabilities to maintain their independence

posted on July 1, 2013 - 9:25am
Quest Vol. 20, No. 3
“I value our relationship and also care for her and enhance her life," Townsend says of Kathy. "We are a real team!"   Kathy takes a break and gets some strokes from her pal, Mike.

A father’s vision for helping his son with DMD deal with depression has grown into a popular restaurant and training ground for people with disabilities

posted on July 1, 2013 - 9:15am
Quest Vol. 20, No. 3
“Employment to someone with a disability is a privilege, not an obligation,” says Garth Larcen. “People with disabilities, they just want to be part of a team.” If anyone should know what he’s talking about, it’s Garth. He’s speaking from both knowledge and experience — as a father, as an employer and as a job trainer.