Safety

Sometimes conquering fear of the uncertain and finding a world of possibilities is just a train ride away

posted on October 8, 2015 - 9:45am
Have you ever felt trapped, isolated or suffocated by transportation-related issues? I’m sure those of you who use a wheelchair, like I do — I have spinal muscular atrophy — or rely on some other form of mobility aid have felt these things a time or two. I know I have. But in the past couple of years, I’ve been determined to face my greatest fear, which includes...

The biggest problem at an ER may not be the one you go in with, but the one you encounter there

posted on July 1, 2011 - 4:18pm
QUEST Vol. 18, No. 3
When a medical emergency strikes — and the patient is a person with a neuromuscular disease — it’s not just getting to the emergency room quickly that’s critical. It’s also critical to ensure the ER staff understands the patient’s special needs caused by muscle disease.

Quest's annual review of the Americans with Disabilities Act finds new rules being implemented and new suits being filed, as the fight for full inclusion goes on

posted on July 1, 2011 - 11:35am
QUEST Vol. 18, No. 3
Beginning in 2012, new or renovated public swimming pools must have sloped entries or lifts. New or altered golf courses must have some accessible holes. Boat docks must have accessible slips, playgrounds and gyms must have accessible equipment, and amusement park rides must have accessible seats. These are just a few of the new Americans with Disabilities Act (ADA) regulations for public...

The Federal Communications Commission is asking people with disabilities how they prefer to contact 911, in preparation for a new emergency-access system

posted on March 22, 2011 - 3:44pm
The Federal Communications Commission (FCC) is conducting an online national survey of individuals with disabilities to determine the most effective and efficient methods to access emergency services. According to the FCC, a new emergency-access system is being developed that will allow people to reach 911 not only by using voice telephones, but text, video and other devices, some of which use...

When a 1,000-year storm hit Nashville, a writer with muscular dystrophy learned the truth of the adage ‘it’s all about neighbors helping neighbors’

posted on January 1, 2011 - 4:28pm
QUEST Vol. 18, No. 1
Devastating. Humbling. Unifying. Frightening. Those are words that echoed through Nashville on the weekend of May 1, 2010, when the area was hit by a storm of Biblical proportions — a storm that would ultimately change the face of this beautiful city. Although I’ve written in the past about disaster preparation for Quest readers, there is nothing like firsthand experience. Here, then, is my story...

From an evacuation to a power outage to a simple family emergency — do you have a plan that accommodates your special needs?

posted on September 3, 2010 - 10:43am
As storm season whips up, it’s wise to take stock of your emergency plan, especially if your mobility is limited. Two veterans of weather emergencies — Barbara Twardowski of Mandeville, La. (who has Charcot-Marie-Tooth disease and uses a power chair) and Shelley Obrand of Davie, Fla. (who has a nonspecific form of muscular dystrophy and uses a power chair and respiratory assistance device) —...
posted on July 1, 2010 - 5:35pm
QUEST Vol. 17, No. 3
Having a baby can be the most thrilling and rewarding experience of a woman’s life, yet it also can be fraught with fear and uncertainty. This is especially true for women with neuromuscular disease. This special report takes a look at the issues that arise for expectant mothers with muscle disease and finds that, with proper care and planning, these women are usually — although not always...

A sampler of products to make your ride safer and easier

posted on July 1, 2010 - 5:34pm
QUEST Vol. 17, No. 3
This two-minute slideshow contains 24 accessories that could make your life safer and easier while in your wheelchair or scooter. The presentation is just a sampler of the many products available online. At any point, you can pause the show to study the product or read the name or web address. The items featured in the slideshow are displayed with website addresses, also listed below. If you see...