Safety

Taking more than care

posted on January 9, 2014 - 9:23am
Without the help of my paid caregivers, I can’t get out of bed. I put my life in their hands every day, and that’s why it was such a slap in the face when one of my aides stole my work laptop. It’s been well-documented that individuals with disabilities are victimized by crime, including burglary/theft, at much higher rates than the rest of the population. In fact, we’re often targeted...

People with MD have an increased risk of falling and decreased ability to recover muscle after injury; these strategies and products can help in ice and snow

posted on February 8, 2013 - 11:27am
Winter can be a beautiful time of year — especially when you're inside under a warm blanket, drinking hot cocoa and looking out the window at the glistening white and the snow-coated branches. Unfortunately, most people have to carry out their daily lives regardless of slippery conditions. Slipping and falling are hazards for everyone in winter weather, but for people with neuromuscular...

A new federal program provides personal care aides for individuals with disabilities stranded in emergency shelters during a declared disaster

posted on August 13, 2012 - 6:00am
Wildfires, windstorms and floods have been in the news regularly this year. What if such a disaster suddenly hit your neighborhood? Would you be prepared?  Planning ahead for emergency situations is especially important for people who have disabilities that affect mobility and self-care. You are in the best position to plan for your own safety and well-being since you know your functional...

An accessible fire extinguisher is still on the drawing board, but here are a few other ways to stay safe

posted on January 1, 2012 - 2:36pm
QUEST Vol. 19, No. 1
In June 2011, Vicki Pollyea of Tampa, Fla., heard a loud explosion on her bedroom porch. Pollyea, who has type 1A Charcot-Marie-Tooth disease (CMT) and walks with assistance, spotted a small fire through her porch door.

The story you're about to read is true; the names have been changed to protect the guilty

posted on October 1, 2011 - 3:31pm
QUEST Vol. 18, No. 4
I’m fortunate in that many of my paid caregivers have been professional, reliable, respectful, pleasant and hard- working. Some have been with me for so long we think of them as family. Whether it was sharing my excitement over self-publishing a novel and moving into our new house, or helping me through the misery of my first months of diabetes and the nightmare of my mother’s breast cancer, they...

The biggest problem at an ER may not be the one you go in with, but the one you encounter there

posted on July 1, 2011 - 4:18pm
QUEST Vol. 18, No. 3
When a medical emergency strikes — and the patient is a person with a neuromuscular disease — it’s not just getting to the emergency room quickly that’s critical. It’s also critical to ensure the ER staff understands the patient’s special needs caused by muscle disease.

Quest's annual review of the Americans with Disabilities Act finds new rules being implemented and new suits being filed, as the fight for full inclusion goes on

posted on July 1, 2011 - 11:35am
QUEST Vol. 18, No. 3
Beginning in 2012, new or renovated public swimming pools must have sloped entries or lifts. New or altered golf courses must have some accessible holes. Boat docks must have accessible slips, playgrounds and gyms must have accessible equipment, and amusement park rides must have accessible seats. These are just a few of the new Americans with Disabilities Act (ADA) regulations for public...

The Federal Communications Commission is asking people with disabilities how they prefer to contact 911, in preparation for a new emergency-access system

posted on March 22, 2011 - 3:44pm
The Federal Communications Commission (FCC) is conducting an online national survey of individuals with disabilities to determine the most effective and efficient methods to access emergency services. According to the FCC, a new emergency-access system is being developed that will allow people to reach 911 not only by using voice telephones, but text, video and other devices, some of which use...