Psychological Factors

One woman with spinal muscular atrophy uses the power of invisibility to her advantage

posted on October 8, 2015 - 9:27am
I was born with a superpower, only it took most of my life to realize that I had it. I had suspicions when I was younger, but never fully understood the breadth and depth of this superpower until recently. I have the power to be invisible. I can be in a restaurant and the wait staff doesn’t see me. I can be going down the street where people are aggressively distributing pamphlets, and I...
posted on January 1, 2008 - 2:59pm
QUEST Vol. 15, No. 1
NOTE: If your local bookstore doesn't have a book mentioned in Quest, usually it can be ordered through the store by providing the author's name, title and/or publisher. Often, books also can be ordered online. Reviewed books are not available through MDA. A Wing and a Prayer: An Artist’s Journey with Muscular Dystrophy by Barb Misheck, 191 pages, 2007, $19.95, PublishAmerica, www.publishamerica....
posted on January 1, 2008 - 10:11am
QUEST Vol. 15, No. 1
In this issue: A great cane ... and walker ** Loves digital Quest ** Living with SMA ** Glad to see McArdle disease.

Make the holidays a time of renewal

posted on November 1, 2007 - 10:16am
QUEST Vol. 14, No. 6
As a child, I loved the holidays, especially the established traditions.
posted on September 1, 2007 - 11:54am
QUEST Vol. 14, No. 5
Three times I broke my right foot. Three times in the same place — directly below my big toe. Strangers would ask why I was on crutches and wearing a cast, and I concocted elaborate stories to explain my temporary impairment. “Skiing, over the holidays,” I’d say. “Car accident. The vehicle was totaled so a broken foot is a minor inconvenience.” “Dancing. My partner has two left feet.”
posted on July 1, 2007 - 4:56pm
QUEST Vol. 14, No. 4
Our son is wonderful,” says K.M., a 42-year-old San Francisco area events manager and the mother of a 7-year-old boy with Duchenne muscular dystrophy. “I couldn’t ask for anything more. He’s everything I ever wanted. Of course I wouldn’t want this disease, but he’s just such a great, sweet kid, and it’s been our hope and dream to give him brothers or sisters.

The heart-wrenching process of helping children cope with the loss of a loved one

posted on July 1, 2007 - 10:09am
QUEST Vol. 14, No. 4
Definitions of the word grief range from the simple  (“sadness associated with loss”) to the more analytical — “a natural process of reacting physically and emotionally to a perception of loss. ” Whatever the definition, grief isn’t a pleasant experience, and when the person who’s grieving is a child, it can be a gut-wrenching, perplexing and often misunderstood process for parents.
posted on May 1, 2007 - 3:58pm
QUEST Vol. 14, No. 3
I once was very proud of my strength. Being the strongest, fastest and hardest-working was very important to me. But as you may have guessed, my story doesn’t end with a gold medal. I’ve achieved much more. My athletic career was terminated by an injury that may have been related to my muscular dystrophy, although I didn’t know at the time that I had MD. All I knew was the strength in my muscles...