Psychological Factors

One woman with spinal muscular atrophy uses the power of invisibility to her advantage

posted on October 8, 2015 - 9:27am
I was born with a superpower, only it took most of my life to realize that I had it. I had suspicions when I was younger, but never fully understood the breadth and depth of this superpower until recently. I have the power to be invisible. I can be in a restaurant and the wait staff doesn’t see me. I can be going down the street where people are aggressively distributing pamphlets, and I...

Sometimes, just to keep moving IS the race

posted on April 1, 2009 - 7:00am
QUEST Vol. 16, No. 2
As a kid, I couldn’t play — much less had any interest in — sports, so I wrongly assumed that exercise just wasn’t necessary. I was a brainiac and a science fiction nerd, so I figured that exercise was just for the jocks, right? The only physical exercise I ever did on a regular basis were what I called Pumps.

Modafinil (aka Provigil) may reduce common fatigue and daytime sleepiness in ALS

posted on March 15, 2009 - 9:00pm
Study results reported in the March 2009 issue of Muscle & Nerve indicate that modafinil (marketed under the brand name Provigil) "may be a promising intervention for fatigue in ALS (amyotrophic lateral sclerosis) patients." Fatigue and daytime sleepiness often accompany this disease. Hiroshi Mitsumoto, director of the Eleanor and Lou Gehrig MDA/ALS Research Center at Columbia University...

A woman and her dog, who both have muscle diseases, share life lessons with students.

posted on February 20, 2009 - 11:21am
In the four years since Gabrielle Ford wrote a guest feature for Quest, she and her dog Izabel (Izzy) have become prominent figures on the national speaking circuit. Gabe’s first book will hit the streets in late February 2009.

A 50-year-old with DMD escapes his nursing home via the Internet, thanks to a friend with SMA

posted on January 2, 2009 - 1:40pm
Dale Dulaney travels the World Wide Web via a mouth-controlled computer obtained by his friend Karen Wheeler, who also has a neuromuscular disease.
posted on January 1, 2009 - 4:03pm
QUEST Vol. 16, No. 1
At a small shop inside a large mall in the Mexican state of Sonora, I drove up to the counter in my electric wheelchair, lifted the aluminum can of soda up onto the counter and put down 20 pesos beside it. As the friendly older lady handed me the change, I asked her if she would pop the top for me, seeing as this small task wasn’t possible for me to do. She was glad to do this, but at...

Genetic testing in the 21st century

posted on November 1, 2008 - 5:42pm
QUEST Vol. 15, No. 6
From the Human Genome Project to TV medical and crime shows, to an evergrowing list of genetic tests purported to diagnose diseases, trace your ancestry or predict your future, DNA seems to be the subject of the day. Even those who choose not to undergo testing find it hard to ignore. Whether or not to get tested is a personal decision. But since the DNA testing genie isn’t going back in the...

Looking through the chaff to find the wheat

posted on November 1, 2008 - 10:47am
QUEST Vol. 15, No. 6